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Where is the video? 🙂
Great point! This video was for their 2012 conference, which had to be cancelled. They are shooting for another one on July 10-12, 2013. You can check it out at cedsa.org. I’m not sure if it will happen this year (I know they are working hard on it!), but I don’t see any speakers listed, etc yet. I took this 2012 video down so as not to confuse anyone! I’ll leave up this thread so folks can go to their new site to check out the 2013 conference. Sound good? Thanks! 😉
I’ve been trying to get details on the CEDSA organization’s July conference in Michigan. I have left emails, posted on the site and even called the office leaving a message but I have heard nothing back! The website says its being worked on but calling a few board members listed phone numbers has not been successful either.
Is it possible this organization is no longer operating?I’ve been trying to get details on the CEDSA organization’s July conference in Michigan. I have left emails, posted on the site and even called the office leaving a message but I have heard nothing back! The website says its being worked on but calling a few board members listed phone numbers has not been successful either.
Is it possible this organization is no longer operating?Hi Charlie1, I’ve been in contact with them a few times and although I hate to speak for them, my guess is, they are in the middle of the scramble to get the speakers nailed down, etc. I’ll let them know that I’ll do a video to announce the conference when they give me the “go”, OK? 😉
That would be great! A bonus for me would be if the conference offered time slots for individuals wanting to book with a speaker/specialist for a private consult. Even if a firm diagnosis is not possible, I am hoping someone of expertise could give their opinion on whether or not I have EDS. I have symptoms of hydrocephalus and MCAS and was diagnosed with POTS 1 yr. ago.
Looking forward to the video. Thank-you Dr. Diana! 🙂Hi. So sorry to be a bug about wanting/needing conference details but my husband needs to know when to book his holidays. I know it appears I’m being impatient but I need to push for information so that arrangements can be made for us to getaway for those few days!
I’ve been looking forward to this for many months now but with July creeping closer, I’m beginning to wonder if maybe CEDSA is finding they need to postpone again. Heard anything more on this Dr. Diana?
CharlieHi Charlie1, I see that they have some preliminary info posted on their site now. You may want to check it out. I know a lot of us are trying to decide what to do… Vacations, doctor visits, illness blah, blah, blah can make the decision a tough one — especially if you’re far from Michigan (like me!) 😉
Hi everyone, In case you hadn’t heard, I just got word that the 2013 conference for cedsa.org has been cancelled. They are looking forward to 2014, though! It sounds like much of their work is aimed for families and the needs of affected children. I’ll circle back with you in 2014 when I hear of what is going on! Thanks!
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