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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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The Chronic Fatigue Element – Part 2

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › The Chronic Fatigue Element – Part 2

  • This topic has 4 replies, 3 voices, and was last updated 9 years, 2 months ago by Barbara.
Viewing 5 posts - 1 through 5 (of 5 total)
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  • January 7, 2014 at 2:52 pm #639
    Dr. Diana
    Keymaster

    Barb, You have the floor! 😉

    January 9, 2014 at 6:52 am #4712
    texan_c
    Participant

    In modern time chronical fatigue is increasing and some study refer it to a life full of too many obbligations that produce too much stress.

    January 10, 2014 at 6:23 pm #4723
    Barbara
    Participant

    For all newbies or those who haven’t read ‘The Chronic Fatigue Element’ topic, here’s a little intro:-

    I felt the general ‘fatigue’ was getting the better of me. I’ve always been determined to get better and at one point I bought an exercise cycle’ to use at home. Although pretty useless physically, initially I could easily do more than a minute of cycling before the pain set into my muscles then, after a short rest, the pain dissipated and I could cycle a little more. I expected to slowly build up my stamina and gain endurance in the process. Well after quite some time, more than a year, I realised the opposite was happening, I could now only cycle for 20-30 seconds before the pain started. (So much for graded exercise treatment!) Apparently this pain is caused by lactic acid – like marathon runners have, when they ‘hit the wall’!! I knew this wasn’t right, I thought I should be improving but, I wasn’t.

    After quite some research into ATP (Adenosine TriPhosphate) – your body’s base energy unit, I concluded there was something wrong in my body’s ‘ATP recycling’ process. Here in the UK, I found a blood test that was developed around 2009, that would look at my ‘Mitochondrial Function’ and pinpoint where things were going wrong, so I thought I’d give it a go, just to see how fatigued I was clinically, a benchmark measure, so to speak.

    Well I was gobsmacked! The test came back showing lots of vitamin and mineral deficiencies, which were hindering this ‘energy production’ process – how could that be, as I was eating a good diet ? It turned out that the ‘poor gut function’ I’d developed was hampering the absorption process.

    Also it seemed, my Pituitary was involved, they said that, although my mitochondrial results are poor, they are not bad enough to cause the level of fatigue I am suffering. They say this is likely to be from poor, if any, Pituitary function, as could my hair loss, dry skin and low temperature. (NOTE: the raised intracranial pressure many of us suffer eventually causes an ‘Empty Sella’, this is referring to the Sella Turcica, a little bony chamber in the base of the skull, where the pituitary sits and, over time if subjected to raised intracranial pressure, becomes flattened).

    In addition, the doctor quoted “Mitochondria can be injured in many ways – the most obvious examples are viral infection and poisoning by toxic chemicals (which can be exogenous from the outside world or endogenous from within), but chronic low-grade infection, allergies, hormone disturbances also play major roles.”
    Several of these issues are highlighted in The Driscoll Theory.
    More to come,
    Barbara
    (UK)

    January 17, 2014 at 5:49 pm #4757
    ourfullhouse
    Participant

    Hi Barb,
    What is the name of the test you had for Mitochondrial Function?

    Thanks!

    January 18, 2014 at 9:35 am #4758
    Barbara
    Participant

    Hi Barb,
    What is the name of the test you had for Mitochondrial Function?

    Thanks!

    It’s the Mitochondrial Function Profile Test, a description of which can be found at :-

    http://www.drmyhill.co.uk/wiki/Mitochondrial_Function_Profile

    There are notes on what you need to do if you don’t live in the UK, at:-

    http://www.drmyhill.co.uk/wiki/Mitochondrial_function_profile_for_overseas_CFS_sufferers_-_how_to_get_it_done

    Let me know how you go on, if you decide to go ahead. The treatment regime has certainly helped me, I had almost ground to a standstill, I was so low on energy supply. I have seen a gradual improvement since I started, which I have measured with my ‘cycling’ test. At first I could only use my exercise cycle for 30 seconds before the ‘lactic acid pain’ started in my calf muscles. Some 6 months later I could manage 5 minutes before having to stop, though I have to say, at this point I had also started on Diamox and Cetirizine, so these could have accelerated the progress. More recently I managed an incredible 17 minutes, weh-hey!
    Barbara
    (UK)

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