October 25, 2014 at 8:34 am #740
Did any of you notice that Dr Diana’s ‘The Driscoll Theory’ book is now available to buy?! It’s got the new zebra-print cover and you’ll find it on the videos page of this website, enjoy:-
(UK)November 6, 2014 at 12:10 pm #5101ourfullhouseParticipant
I see that the book is a PDF. Can I read it on my kindle or only on a computer? Does anyone know? Thanks!November 12, 2014 at 1:35 pm #5106Dr. DianaKeymaster
Thank you for your patience! The information about the new book is here: http://prettyill.com/the_driscoll_theory YES! You can view it on your computer or ebook reader (just email it to your Kindle or other reader). I hope it is hugely helpful for everyone who is trying to understand how so many of these “invisible illnesses” tie together, and how we can begin to treat these at the source. It may be difficult for those of us with “EDS/POTS” to reverse our condition merely by treating the symptoms. Let’s start at the source, shall we? Much more to come… Gentle hugsDecember 4, 2014 at 2:24 am #5134
Please, please do a printed version as soon as you can. I want to share your theory with doctors and EDS friends in printed form. (They won’t read electronic versions.)
I can donate labor if you can use anything I can do.December 4, 2014 at 10:48 am #5138
I agree, a printed version left with a doctor (with a page reference) is far more likely to be read by a treating doctor – if you get a conscientious one!December 4, 2014 at 4:03 pm #5144Dr. DianaKeymaster
Thanks Violet and Barb, The main reason we didn’t go with a printed version is that we can’t do color (without the book being INCREDIBLY expensive). The pictures (and the text, actually) look terrible without color. In black and white, you just can’t see what we are trying to demonstrate. We also kind of realized that “most” doctors likely won’t read it anyway! (is that too harsh?) If we publish in peer-reviewed journals, we have a better chance of reaching other physicians, but honestly, many practicing doctors find it hard to take the time to read journal articles, too! It is hard to be on the cutting edge, isn’t it? BTW, I’m considering a small text for doctors (perhaps with the Diamox treatment pearls in it). Thoughts? 😉December 4, 2014 at 5:38 pm #5146
Makes sense. Peer-reviewed journal articles would, I guess, take much longer. I believe the doctors would be more receptive when they have a zebra in front of them, showing them the material. An abbreviated form for doctors would be great. I guess doctors would respond best to journal article length.December 4, 2014 at 6:19 pm #5147
Good idea!December 4, 2014 at 7:09 pm #5150
we can’t do color (without the book being INCREDIBLY expensive). The pictures (and the text, actually) look terrible without color.
If you did not know, some printers can do the book in B+W with only a few pages in color, and they charge color costs for those pages only. Just an idea. The B+W text should look great, or I can’t see how anyone would use them for printing.April 28, 2015 at 8:20 pm #5457artistDuJourParticipant
Dr. Driscoll–I couldn’t find any other way to contact you with this matter–no answers to the queries I sent to the address I received your book from. I ordered your book in the new non-printable PDF format. Like others, I was disappointed that I could not print out a page here and there to share with my doctor, but I at least wanted to read the book. The link said I had only 36 hours to download (or 4 attempts). I had hoped to download it to my kindle, but could not make that happen. So I settled for downloading it to my desktop–started reading it, but then closed it for a bathroom break. When I reopened the PDF, it was entirely blank! Nothing I did would bring back the content. So I downloaded it again and tried various ways of making sure I had “saved” it in my downloads…..but still, as soon as I closed it, it turned into a blank PDF. (This has never happened with the many other downloads I have done.) Finally I downloaded it again and stayed up all night reading it, because I knew I would have to close it eventually to use my computer for other necessary things. Sure enough, as soon as I closed it, it went blank again–I now have 3 totally blank PDFs on my desktop….and the 36 hour window for using the link has passed.
You said elsewhere that doctors would not read this book, but I think there are some who are really interested in ongoing EDS research. But how can I even present the idea to my doctor without some of the details of your protocol? I feel like I have no way to try your theory without access to the details of how and why, etc. I have had past success with printing out informative EDS articles, charts, testimonials, etc. for my doctors….but on this I have no way to accomplish that. I can try to tell her about it….I certainly have very definite symptoms that would coincide with your theory….but my memory is useless for trying to recall pharmaceutical names, dosages, side effects, etc. It is very frustrating to have paid $20 for a book and not actually have the book.
I am one of those who has been totally stripped clean by EDS. It has taken away my ability to hold a job, drained all my savings and resources, and left me dependent on a small disability pension ($700 per month) and whatever Medicaid will cover. $20 is a lot in my circumstances and it was a big decision to spend that on a 150pp. “nonprintable” book–but I thought I would at least get to keep a copy on my computer to refer to. I really think you are onto something important with your theory….I have had a large circumference head all my life, and in addition to having ALL the other symptoms you listed, I have had a lot of sudden gushes of clear liquid completely soaking my shirt and sheets. I would really like to try the medication protocol you recommend….these continual disabling headaches with severe vomiting/dehydration have repeatedly sent me to the hospital, but no one has found a way to actually treat them….nor the wildly shifting spikes of my orthostatic hypertension. I think my doctors are overwhelmed and ready to try almost anything….and a success would certainly help support your theory….but I need access to the book!
Can you please help this fellow sufferer? I will be happy to forward my receipt to you.
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