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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

Uncomfortable disconnected feeling in base of neck, into shoulders

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Uncomfortable disconnected feeling in base of neck, into shoulders

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  • July 7, 2014 at 12:38 pm #715
    Tiredofnoanswers
    Participant

    I recently was diagnosed with closed angle borderline glaucoma and am in the process of laser to open the channels. But I also suffer from pain in the occipital bone in the back of my head, as well as base of skull locking up making it painful and difficult to move my head. it feels like my head is going to literally become detached from my spine and causes a lot of anxiety. I also have the most disturbing tingling and tightness in the back and base of my head Anyone experience this?

    December 4, 2014 at 12:59 am #5132
    Violet
    Participant

    But I also suffer from pain in the occipital bone in the back of my head, as well as base of skull locking up making it painful and difficult to move my head. it feels like my head is going to literally become detached from my spine and causes a lot of anxiety. I also have the most disturbing tingling and tightness in the back and base of my head

    Maybe this could be craniocervical instability?

    I need to read much more about CCI. I found one person who said they felt their head was falling off their spine and thought it was CCI.

    I feel that way every day. I’m not as bad if my neck muscles are rested.

    I can relate to your username.

    December 4, 2014 at 11:23 am #5140
    Barbara
    Participant

    I only felt my head literally move independent of my neck once. It was whilst responding to a request to stand up straight for an xray. I did a very firm and precise movement to stand up straight (like a sergeant major would, when standing to attention) and it felt like my muscles had lifted my head, moved it back and plonked it down behind where it was previously – it was very weird! So was my xray! The rest of the time, I was never aware of any independent movement.

    The pains you describe are usually linked to a build up of CerebroSpinal Fluid (CSF) within the skull causing pressure on the nerves. More often than not caused by restrictions at the cranio-cervical junction (where the head meets the spine). This can be caused by anatomical elements being displaced into the space where the CSF normally flows freely, or by craniocervical instability (CCI) causing intermittent CSF flow restrictions.
    Regards
    Barbara
    (UK)

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