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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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US Veteran with possible EDS

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › US Veteran with possible EDS

  • This topic has 2 replies, 2 voices, and was last updated 7 years, 9 months ago by Barbara.
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  • April 8, 2015 at 6:16 am #819
    cclairew
    Participant

    I am a US Veteran dealing with VA system healthcare. I’m looking for a diagnosis and I don’t know where to start. I have been in a continuous circle of doctor to doctor. Please help.
    I am 32 years old and I was at an appointment with my VA appointed social worker who suggested I read about Ehlers-Danlos. Everything I read basically described my life. I’m in constant pain and doctors just ignore my symptoms because I look fine on the outside. I grew up in Alaska with strange symptoms that stumped doctors, which I know now to be raynaud’s syndrome. If I do have EDS it would explain all the different problems I have experienced over the years.
    I need to know where to start. All I have is a huge list to ailments that have gone undiagnosed for far to long. I want what everyone else wants… a diagnosis to better care for myself and my life.

    April 12, 2015 at 1:53 pm #5424
    Dr. Diana
    Keymaster

    Welcome to the forum! I think I can speak for everyone here that we are so sorry to hear you are suffering. I think you may have better luck getting help from the folks here if you could tell us more about your condition. Specific questions are easier to address than vague, global questions, too. Because my research is in EDS/POTS, I’m curious to learn if you have POTS?

    April 14, 2015 at 11:57 am #5433
    Barbara
    Participant

    Dr Diana’s also produced a video on this website talking about the ‘Symptoms Checklist’, watch it at:-

    http://prettyill.com/videos/watch/a_checklist_for_your_symptoms

    To quote Dr Diana, about the checklist, she says – “This will help us with disability claims, dealing with schools, and getting out to physicians the extent of illness we can suffer. You can find it here:
    http://prettyill.com/resources/articles
    This is under the “Articles and Publications” section.”

    Also there are stacks of useful Dr Diana videos at
    http://prettyill.com/videos

    In particular, Dr Diana talks of her own symptoms in the following 2 videos:-
    http://prettyill.com/videos/watch/DrDiana_and_her_symptoms_Ehlers-Danlos_POTS_dysautonomia_hydrocephalus

    http://prettyill.com/videos/watch/my_symptoms_part_2

    I think you’ll find many things you’ll be saying ‘yes, me too!’ to.
    Barbara
    (UK)

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