February 22, 2014 at 6:09 pm #674
Hi Dr. Diana,
I am seeing a geneticist in July to be tested for EDS, but feel sure at this point that I do have it, Type 3 from what I’ve been reading and learning from others.
I have been dealing with a mystery symptom for about 20 years now. In my early 20’s, I worked as a data entry clerk, so, I was on the computer all 8 hours a day. After about 5 months I started to develop a tingly/pulsing sensation in the very center of my forehead. It felt like it was deeper than just the skin, like it was inside my brain. Sounds crazy, but please don’t say “It’s all in my head!” LOL A neurologist and eye dr told me I was fine and couldn’t help me. I quite the job and it went away. Soon after, I started back to college and being on the computer again for school work for several hours a day, it started again. I have always assumed it was due to eye strain, but have never heard of anyone else who has this or that it is a normal occurrence with eye strain. What do you think?February 23, 2014 at 11:56 am #4901Dr. DianaKeymaster
Hi Godzgirl, Honestly, that doesn’t sound like eye-strain unless you can link it with the use of your eyes (worse while reading — stops after reading — that sort of thing). I believe the best way to get to the bottom of some of these weird symptoms is to look at the OTHER symptoms you may be having, to try to find a commonality. Does that make sense? Nothing stands alone in these crazy conditions. What other symptoms do you have? Gentle hugs…February 24, 2014 at 11:33 am #4903
Thank you for returning my message.
Yes, when I quit the prolonged computer use the sensation goes away. I do get “tired” eyes from prolonged use, and I have dry eyes too.February 24, 2014 at 9:29 pm #4904Dr. DianaKeymaster
Thank you for returning my message.
Yes, when I quit the prolonged computer use the sensation goes away. I do get “tired” eyes from prolonged use, and I have dry eyes too.
Hon, If you follow your finger far to the left or right while keeping your head straight, do you ever see double (two fingers)? I wonder if you have a partial lateral rectus palsy — very common with us. An eye exam is the best place to check for this (obviously), if your doctor knows to look for it! It can be easily missed, I’m afraid. 😉February 25, 2014 at 12:05 am #4905
I tried the finger test and had my roommate do it to me too and no double vision. So, I really am just weird! LOLFebruary 25, 2014 at 11:16 am #4907BarbaraParticipant
Just did the finger test you described and . . .
To the right – upon reaching 2/3 of the way towards the extremes my eyeballs start to wobble badly! It’s very difficult keeping my eyes on the finger (and I start to feel ill). I cannot track it any further. As I bring the finger (and therefore my eyes) back towards the middle, the wobbling stops and all goes back to normal. Any ideas what’s causing this ?
Looking to the left, I cannot track my finger the whole way, only about 3/5 of the way, although I can see my finger travel the rest of the way in my peripheral vision, is that normal ?
(UK)March 9, 2014 at 8:49 pm #4924MJParticipant
Oh boy… I too can only go so far to the right and the left. And I feel pain, pressure – especially behind the bridge of my nose and I feel ill. Also my breathing is very shallow. Then, if I let my eyes drop down (to where they want to go) from staring at my finger, I am much more comfortable, the pressure behind the bridge of my nose is relieved and I can breathe deeper.
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