May 17, 2015 at 4:09 pm #837ShellyParticipant
Dear Dr. Diana,
I hope I’m using the site correctly; I’m new to this, as well as EDS! I have been recently diagnosed with cranial settling/basilar invagination and get headaches, pressure, and pain in the neck and top of my back. I just bought your book but in the book I couldn’t find the recommended dosage for Zantac and Zirtec. I think the smallest dose would work as for the moment I’m not too bad, fingers crossed. My doctor has agreed to let me try Diamox and I will pick up the prescription tomorrow and I will try what you suggested, which is, I believe, 250mg at night.
Also, I would like to know if you can recommend an ophthamologist who is familiar with EDS on the East Coast (I assume you are not working as an eye doctor at the moment)?
Thanks for all you do,
ShellyMay 20, 2015 at 10:27 pm #5491Dr. DianaKeymaster
Hi Shelly, Everyone is different, of course, and if you do well on a small dose, then AWESOME. Many of us need double the usual doses (we take what it says on the box, but take it twice a day, not once a day) — at least for a while. If you respond well, it may be important to switch to stabilizers as often as possible, rather than use antihistamines every day, all year. A typical dose combination is Zantac 150mg twice a day with Zyrtec 10mg twice a day. In the book, you’ll read about some of the problems with staying on these long term. But for many of us, they are life-savers. 🙂May 21, 2015 at 11:18 am #5493ShellyParticipant
Thank you so much for your reply, Dr. Diana, as I navigate these new waters. I am so glad I bought your book and have had many ah-ha moments, like things are finally making sense at 48. So with regards to the Zyrtec, I think you meant 10mg twice/day and Zantac 150mg twice/day. The Diamox seems to be helping with the pain, in particular at night (when it’s worse), so I’m very happy about that. I will see if my doctor will let me try a stabilizer as I’d prefer not to be on Zyrtec for too long as it makes me sleepy, and I need energy! 🙂 Take care and thanks again.May 21, 2015 at 12:00 pm #5494Dr. DianaKeymaster
Why yes — that IS what I meant (and corrected — Doy). 🙂 Thank you for pointing that out! Not everyone has a problem with histamine or histamine producing cells, but when you do, these are incredibly helpful. Keep us posted? 🙂
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