Diane

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July 25, 2018 at 2:28 pm in reply to: Child w/severe blurred peripheral vision/Hydrocephalus? #6295

Diane
Participant

Hi Dr. Diana,

Thank you for your response. I shared the Driscoll Theory with my son’s Neurologist and
received a response that there is no sign of high intracranial pressure from all of his imaging
and they would not be willing to do a trial of Diamox or any other similar drug. I will contact you
at the number you’ve provided. For my information, is it typical that this would not be noticed
on Mri/a’s or ct scans? Is it a matter of communicating to the radiologist something additional
that is easily overlooked? Thanks so much.

August 28, 2012 at 8:53 am in reply to: Did you see the vid about the end of my POTS? Please respond if you're interested in the clinical trials! #2815

Diane
Participant

Hi Dr. Diana,

My brother produced a video for University of Cincinnati about a gal who apparently has POTS. Wanted to share it with you. I’m hoping she can connect with you. http://www.youtube.com/watch?v=HJatamCqcHA&feature=youtu.be

Diane
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