Hi Dr. Diana,
Thank you for your response. I shared the Driscoll Theory with my son’s Neurologist and
received a response that there is no sign of high intracranial pressure from all of his imaging
and they would not be willing to do a trial of Diamox or any other similar drug. I will contact you
at the number you’ve provided. For my information, is it typical that this would not be noticed
on Mri/a’s or ct scans? Is it a matter of communicating to the radiologist something additional
that is easily overlooked? Thanks so much.
Hi Dr. Diana,
My brother produced a video for University of Cincinnati about a gal who apparently has POTS. Wanted to share it with you. I’m hoping she can connect with you. http://www.youtube.com/watch?v=HJatamCqcHA&feature=youtu.be
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross