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jennifer7854
ParticipantYes! Pool Party at my house! 🙂 If you can’t make it, then some say the mammalian reflex can be achieved by dipping your face in ice water. Not as fun as a pool party!
Luckily since I agree with you about licorice not tasting that great I take Licorice Root capsules. I heard this from a Vimeo lecture on POTS and the Dr. mentioned licorice was the natural alternative to Florinef.
Anyway I can’t help but wonder if (at least for me) the hypoxia is a major culprit in the snowball that just keeps rolling…EDS=low blood pressure=hypoxia=adrenaline surges and pots. Hypoxia also= mast cell activation=inflammation=pain AND nerve damage=big snowball=depressing! I know it’s not that simple but something along those lines? I am doing many different things to feel better but constriction is top of my list. I am instantly MUCH happier when constricted! Coffee also has been a gift from God for me too. It has snapped me back to normal many times. Anyone reading this take all my info with grain of salt (which by the way helps too) haha.
jennifer7854
ParticipantWhat helps me since I have very low blood pressure (may not be safe if you have high BP) is when I am really down and depressed I dive down to the bottom of the pool and hang out for a bit. Somehow I knew this would kick out the depression and it does almost immediately. Later I learned this triggers the “dive reflex” that we share with penguins and other animals. It slows the heart rate, vasoconstricts which increases arterial blood pressure! The purpose of these combined reflexes is to conserve oxygen and to redirect blood to the brain and heart. I had also learned that cold water showers a couple of times a day is great for depression and has many other benefits. If there was a fire and I had to grab 2 of my supplements it would be the Butcher’s Broom and Licorice. Anything that constricts makes me feel a lot better physically and emotionally.
jennifer7854
ParticipantMy daughter has dermatographia but I don’t. She was tested for EDS but the geneticist says she does not have it. She does have POTS, gets abnormally tired and has other symptoms that make me wonder. My Grandmother was known for her dermatographia! As for the antihistamines I take Zyrtec,Zantac and sometimes take Quercetin. The Zyrtec and Zantac actually took my chronic back pain away! I have a Harrington Rod from scoliosis and had been in pain for decades. I owe you a big THANK YOU for that one. 🙂
jennifer7854
ParticipantI do get a strange rash every day after a warm/hot shower around the edges of my arm pits that last a few minutes and then goes away. It does itch during those few minutes. At first I thought it was the towels but tested that theory and it wasn’t. This has been going on for years. Other than that I don’t have any other rashes or bumps.
jennifer7854
ParticipantHi Dr. Diana,
Yes I have been diagnosed with interstitial cystitis and have been in the ER a couple of times in absolute pain and they tell me all the test are normal and I don’t have any infection. It’s just IC. At this moment I actually do have a real UTI and have no bladder pain at all! My only symptom was spotting. Very strange. I have Ehlers Danlos, POTS, Scoliosis with Harrington Rod, IC and the list goes on. 🙂
Jennifer
June 8, 2012 at 2:21 pm in reply to: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? #2368jennifer7854
ParticipantI have had the neck shoulder pain everyday since I can remember…at least 35 years! I tried the Zantac Zyrtec combo…and it’s GONE! Didn’t get too excited since it was maybe a placebo effect…but guess what! It’s been two weeks and it’s still gone! Thank YOU Dr. Diana!!! 🙂
Little History: HEDS,POTS,Harrington Rod from Scoliosis…list goes on. -
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