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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Amarilis

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Viewing 6 posts - 1 through 6 (of 6 total)
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    Posts
  • February 6, 2015 at 8:17 am in reply to: Icp through mri #5283
    Amarilis
    Participant

    Thank you!!

    January 27, 2015 at 3:43 pm in reply to: Intracranial HYPOtension and ctd… Question #5272
    Amarilis
    Participant

    Thank you diana. You are very kind. They suggest a bp (anyway surgery is too dangerous because of the previous ones) and the uncertainty of imagines. A low volume one, I think.
    Here in my country there is no small release diamox.
    I have read about pressure mesurement in a non invasive way, but in europe it seems they don’t do it – simply using mri.
    Thank you.

    January 27, 2015 at 2:13 pm in reply to: Intracranial HYPOtension and ctd… Question #5270
    Amarilis
    Participant

    Ps i have tried diamox – two a days. But it didn’t help…

    January 27, 2015 at 2:12 pm in reply to: Intracranial HYPOtension and ctd… Question #5269
    Amarilis
    Participant

    Thank you. I know leaks are sometimes … Hidden. Hope to find a way out!

    January 26, 2015 at 12:13 pm in reply to: Intracranial HYPOtension and ctd… Question #5267
    Amarilis
    Participant

    Sorry again… All started to become harsh when my extreme motion sicknesse, never have had before, started. Neurologists say it’s not only typucal of hyper, but also an hypo can give it.

    January 26, 2015 at 10:34 am in reply to: Intracranial HYPOtension and ctd… Question #5266
    Amarilis
    Participant

    Excluded ccsvi and pots. have autoimmune thyroid disease…

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Viewing 6 posts - 1 through 6 (of 6 total)

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This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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