Forum Replies Created
January 12, 2016 at 8:52 am in reply to: vestibular problems or ? #5786
Hi! I just noticed your post and if you wuld like more feed back you can copy your post and post it under another topic on the board. This discussion has been closed for a long time so it has not been seen by many people. If you would like you could even copy and paste the whole discussion you have had here. I know others would like to read your post.October 25, 2015 at 11:11 am in reply to: Do you crave sugar when your pain increases? #5675
I knew there had to be something to it. I do know that sugar can make infection worse and pain worse. I never thought about the comfort aspect of this, but you are right. We learn early on to comfort ourselves and mostly with food and what tastes the best?, SUGAR…. darn it.
😉July 14, 2015 at 5:01 am in reply to: Do you crave sugar when your pain increases? #5573
Lol…. I have that trouble as well….. have mercy. I often think that lots of things we have are vicious circles.March 21, 2015 at 11:57 pm in reply to: Pancreatitis anyone? Oh brother…. #5404
Oh my goodness….. that pain sounds like something I wouldn’t want to wish on anyone.
Dr. Diana, yes to everything you said. I am wondering what we are going to do next. I am just feeling better, well, pain wise but I still feel really icky!!! I guess I’m just tired from being in so much extra pain.
The question I have is related to the questions you asked Dr. Diana. I have clay colored stools a lot and I ask about them to my GI and he just says, I don’t know…. of course my blood work looks ok. (rolling eyes back). Is it not normal to have clay colored stools for EDSers or is this just another one of those things we have and can’t prove with blood work? I tell you what, I am sooooo tired of having symptoms of illnesses and the doctors never paying attention to that but instead want to only depend on blood work to prove stuff. I can’t even think about it because it makes me so mad.
Do you think they put me in the hospital? NO, not that I want to be in the hospital, but come on…… they know how sick I am to start with and they just ignore me. They meaning Baylor ER and Plaza ER and my doctor. uuuggghhh….
Sorry to be a downer with this but it just makes me so frustrated. Another reason I get frustrated is because I have told the ER and my Doc that I live alone with no family close by to help me and that I can’t take care of myself when I am having a bad illness. OH well, I think they are hoping I will go home and die from neglect so that they can get rid of me. lolMarch 12, 2015 at 9:38 pm in reply to: I'm sure we can all relate #5370
Thanks Dr. Diana!
I’m am glad we have a place to share with each other.March 10, 2015 at 3:57 pm in reply to: Am I dreaming?? #5360
Dr. Diana…… what sense of humor… I never laugh….
You are right, a sense of humor gets me through so much so often!!!March 6, 2015 at 11:41 am in reply to: Am I dreaming?? #5338
Hi! I’m glad that you found this site! I felt the same way as you about finding others who are as miserable as me. It doesn’t sound like that shows that I am a very nice person but I think just about anyone else going through what we do feels the same way. I don’t want anyone else to suffer, well, including me, but sense I am and all of us here are to then Thank Goodness we have found each other.
I am sorry that you are facing insurance and money difficulties, the added stress does not help you feel better at all. If you can just remember during this time to take some “you” time and rest as much as possible hopefully that will help you a little bit with the stress level.
Happy reading and be sure and post any questions that you have. I find such great answers here!!
Blessings!March 6, 2015 at 11:25 am in reply to: Blood Work Values!! #5337
Wow…. Just with a quick read of the above and below posts answered so other questions that I have. I can’t wait to go through and read the whole thread!
Thanks again, and the way you explained the blood volume makes complete sense to me and I’m not even good with math. lolMarch 6, 2015 at 11:18 am in reply to: Blood Work Values!! #5336
Thanks so much Barbara, I will check it out and print it out and take it with me for my appointments coming up.
I will also take them the list to check of the things you suggested.
🙂July 12, 2014 at 1:18 pm in reply to: Answers Coming! #5035
So very EXCITED!
My Endo Dr says she likes B12 to be in the 400’s at least.
Mine are much lower than that.January 5, 2014 at 10:15 am in reply to: THICK, SPLITTING SKIN ON HANDS – OPPOSITE OF EDS #4692
:)Hugs!January 5, 2014 at 5:56 am in reply to: THICK, SPLITTING SKIN ON HANDS – OPPOSITE OF EDS #4690
So Sorry you are having to deal with this. It looks painful! I hope you find some answers with the doctor.
Blessings!!January 4, 2014 at 4:47 pm in reply to: THICK, SPLITTING SKIN ON HANDS – OPPOSITE OF EDS #4688
It is great for dryness.. I was just thinking that it might offer her some relief in the mean time…… 🙂
For sure there must be somthing going on to cause that in the first place.January 4, 2014 at 11:57 am in reply to: THICK, SPLITTING SKIN ON HANDS – OPPOSITE OF EDS #4685
I hear that udder cream really works well for very dry skin. I have been needing to get some but just haven’t felt well enough to hunt it down. If you do use this or any other heavy cream or lotion try putting it on right before bed and then putting on a pair of gloves overnight. I use white gloves like I wore in marching band or like the kind that Santa Clause wears.