Forum Replies Created
Thank you Dr. Diana for taking time out of your busy schedule for your reply. I looked at the reference that you mentioned and I think you’re a hundred percent right.
I don’t want to have pots but I suppose it shouldn’t surprise me. I recently remembered when I was in my early twenties there was a time where I would stand up, cross the room and be too tired and dizzy and have to go lay down and then after a couple minutes of laying down I was fine. awake. alert. not tired. but as soon as I stood up it was really hard. I would walk across the room and be so tired I’d have to lay down again. And the brain fog really started bad. I went to all sorts of doctors and long story short they tried to psychoanalyze me… why would this thin, athletic, competitive, fairly attractive young woman be sick? They even made passes at me. Pretty much gave up on most doctors after that. But I think it may have even started around 8 years old. now it still happens but I’m sort of used to it. I haven’t been able to accomplish what I would like to because of fatigue but as I mentioned the parasym plus, Diamox, and H1 antagonist has changed my life so much for the better including unexplained anxiety and anger. it’s nice to feel calm and I miss it when it’s not there. I’ve also found a great internist who is very receptive to your work. I haven’t been officially diagnosed with pots yet but if I am then I will be glad to participate in your study.
I apologize. I only just found out about this research myself. Dr. Theoharides is a physician pharmacologist who has done much research into mast cells and has developed products that have been very successful for some. Here is a link to his website and a search phrase that I use to find out more about him. He has many videos on his website that explain his research which is mostly involved in autism but also other zebra like conditions. I would really like to find natural alternatives to taking the pharmaceutical histamine antagonists and pharmaceutical Mast Cell medications. I’ve also found a lot of great information at the website “healing histamine” even though I don’t think I really have histamine intolerance.
Dr. Theo mast cell
“Pharmacology is the core of translational research leading to ways of alleviating disease. We study how mast cells are involved in allergy and inflammation. We showed that mast cells are activated by CRH and neurotensin secreted under stress to release inflammatory molecules selectively, including mitochondrial DNA (“innate pathogen”) leading to disruption of the gut-blood-brain barriers and to inflammation. We have also shown that the flavonoid luteolin is inhibitory, and a patented liposomal formulation NeuroProtek®, benefits patients with allergies, autism and chronic fatigue syndrome.”
Barometric pressure tonight is 991. Ouch. Even my eyeballs hurt. Is this when I should take additional Diamox to compensate?
I apologize for the H3 confusion.
I recently added cetirizine hydrochloride to my protocol and, once again, my quality of life has improved exponentially! So I decided to do research on histamine and found this page on Wikipedia
In continuing my research I went here
This caught my attention because I have trouble with some sort of an ADD type brain thing so it appeared Ciproxifan might help. Thank you so very much for all you’ve done.
I’ve been taking Parasym plus going on 1 year now and I must say it has changed my quality of life…well…dramatically and wonderfully. My brain is working!
I am taking it with diamox. Regarding diamox: it is not working as well as at first. But perhaps my co2 is off. Haven’t been paying the needed attention to it. I am on a modified ketogenic diet and perhaps consuming some of the foods I need to avoid. Need to review that. Headaches truly change my personality and make the gift of living more challenging thus the reason I checked in on the prettyill forum.
I had great success with my doc by forwarding him a Youtube link to Dr. Driscoll’s University of Houston presentation several days before my visit. And, yes, he watched it. And, yes, it influenced him. I believe the key was that it is presented at University of Houston and you might want to emphasis that to your doc. Also, by sending the link ahead of my visit allowed him to digest the new ground breaking info so he was prepared and didn’t have to feel stupid by not being familiar with the info. While my U.S. insurance does not cover it, I still wanted him involved. He is also willing to have me try Dr. Driscoll’s Diamox protocol if Parasym Plus does not relieve my headache. He also has other hypermobile patients and is very interested in how it works for me. Hope that helps.
Ginkgo Biloba Update
Well, I had high hopes Ginkgo Biloba would help relieve my headaches a bit but, sad to say, it hasn’t. Oh well.
I did get some headache relief from magnesium L-threonate! An 85% lifting of the literal cloudiness of vision activity. Plus a bit more thinking ability. At first it improved my headaches 85%, too! I was over the moon happy, but then I ran out so didn’t take it for a couple weeks. Started again but I never got the headache relief I’d had. Who would have thought. I even called the mfg. to see if batch might be bad. So, if you try it and it works, be aware that may happen if you stop. Also, it crosses the blood brain barrier, which is a bit scary for me but sometimes we must make those decisions as to when quality of life is more important than risks. It is available as vitamin and appears Source Naturals has the best price. I only take 1 capsule at night rather than the 3 capsule schedule recommended. I may try adding another capsule. Just need to work up the courage.
I was just this minute going to write a post to ask how you were doing!
Glad you are up and around again.
Thank you, Dr. Diana, for all you have done for us.
Hi all, I’m new.
Regarding magnesium I just learned about a form called Magnesium L-threonate. Here is a quote from Jarrow’s product: “Magmind (magnesium L-threonate, or magtein) is the only form of magnesium that has been shown by promising research to readily cross the blood-brain barrier and provide significant positive effects on cognition, memory and brain health. Magmind may also improve relaxation and sleep quality.”
Also interesting comments in the review section of this product.
I’ve always craved magnesium. Perhaps this form will get rid of my headaches?
Ps- Recently learned I have hypermobility syndrome and am starting to research about it. Thanks for all this information.