Forum Replies Created
April 2, 2014 at 4:49 am in reply to: What meds do those of you with Hyperadrenergic POTS take to control your symptoms? #4958BornBendyParticipant
I had one pre dx’d Sept 2012 to check for coeliac (celiac) so would hope they would’ve noticed if anything else.
My g.i other wk said if daily Omeprazole doesn’t now stop heartburn then thinks I should have one done. But now my PoTS Dr has swapped it to H1 & H2 to try. My heartburn etc had improved a couple of days before swapping & has upped ivabradine to 5 mg ” twice a day & I was worried this would flare heartburn but touch wood not noticed prob so far & had rice yesterday & didn’t choke. But its been nearly 6 days since started H1 a few days after upping Ivabradine, he said take H2 when required so assume that’s if I get itchy? Can you confirm what you suggest Diana? Anyway I’m getting alot of tum gurgles & belching as if I’ve had a large dose of fructose (more symptoms than when I had hydrogen breath test). Was hoping would ease but not so far. Annoying as I’m feeling less fatigued more of the time.
Zebra (((hugs)))March 2, 2014 at 6:48 pm in reply to: What meds do those of you with Hyperadrenergic POTS take to control your symptoms? #4914BornBendyParticipant
Hi Diana & all, Hope your feeling better Diana? Been a while since I’ve been on here. I am still trying to get properly tested for hpots & mast cells (UK) not properly ruled out. When I started Bisoprolol, had high acid heartburn & pain in middle of esophagus inc when moved, (was before starting omeprazole) went away after several days) skip onto now starting ivabradine (half in mornings to start then x2 a day) & same again with heartburn but not as painfull due to being on omeprazole from 1 daily down to 1 every other day as wears off after 48 hrs & some food eg bread rice sticking in throat (like pre omeprazole days) GP said to up dose so took 1 daily stopped mostly after 1 wk. Delayed upping ivabradine to 2 daily for extra wk to be sure acid died down. Since then still get ramdom mild heartburn pains upper left chest, poss a bit like pins & needles doesnt last & sometimes a weird clicking type noise/feeling in middle of esophagus when I move chest (where pain used to be). Anyone know what it is? Had a couple of mouthfuls of chicken korma (not had that korma before & wasnt that mild) & rice not that soft & had horrid choking with food not going down & pain, eventually I cleared it, but scarey. G.I Dr is due to call me & I was going to tell her all this (brainfog allowing) when she does. Not sure if ivabradine is making me depressed as finances is a big worry at moment. Its not helped with brainfog poss even worse, also been getting more frequent mild headaches. Havent upped Ivabradine dose as although heartrate has been 100+ when in rush etc wasnt able to check more then once as I was going to hosp appt, resting heartrate is 52-65 mostly. ps hospital put me on fodmap diet which has helped alot with g.i. Before dx’d fructose malabsorbsion I did try piriton then benedryl (I think before started omeprazole) then thought I should go along with Dr meds to see if helped. Thanks