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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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bugbytes333

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Viewing 14 posts - 1 through 14 (of 14 total)
  • Author
    Posts
  • March 21, 2016 at 3:36 pm in reply to: ParaSym Plus #5910
    bugbytes333
    Participant

    Does PP work for icp?

    March 8, 2016 at 8:25 pm in reply to: Hyperadrenergic pots and being a hypochondriac with ocd #5904
    bugbytes333
    Participant

    I struggle with all the symptoms you do and it’s horrific
    My ocd and anxiety are a trillion times worse with Hyperadrenergic pots

    February 11, 2016 at 9:59 am in reply to: Parasym Plus Causing Side Effects? #5852
    bugbytes333
    Participant

    I think I am very sensitive to the PP. If I take two capsules I get very dizzy. My body feels disoriented for a while.
    Not sure what that means?
    One capsule seems to be okay.

    January 28, 2016 at 10:50 am in reply to: New . . . how to start? #5819
    bugbytes333
    Participant

    I’m starting to get muscle aches especially in the upper legs and in my arms and movement feels weird in my body when I’m laying in bed. Also getting tremors. I believe I am hyper adrenergic pots but was not diagnosed that way but when I stand up my blood pressure goes through the roof at times and I feel very shaky all over. Getting nervous about it and hoping it’s just being potsy

    January 2, 2016 at 8:49 am in reply to: I'm so lost #5774
    bugbytes333
    Participant

    .

    December 28, 2015 at 4:21 pm in reply to: I'm so lost #5770
    bugbytes333
    Participant

    I bought Zantac and zyrtek today. What is the best way to get started using these.?

    December 27, 2015 at 10:21 am in reply to: I'm so lost #5765
    bugbytes333
    Participant

    I so desperately want to go to your center potscare.
    My Dr that I have had for years has totally discarded me because he doesn’t believe me. My last appointment with him was awful. He made me feel so bad. Even after reading my tilt table test report.
    He was very cold and down right disrespectful. I left there crying and more lost than ever. 🙁

    I’m so tired of going through this every day with all the symptoms and using bandaids to cover them up and even that is not helping.
    I truly don’t know why or how this developed and bang my head against the wall trying to figure out what it is.
    Dr Driscoll I have got to get to you and your team.
    Dr after dr. and no relief.
    The dizziness is like torture.
    Scared and sad…
    I’m going to order the Driscoll theory tomorrow
    Ps does antihistamines interact with propranolol?

    December 13, 2015 at 6:37 pm in reply to: I'm so lost #5760
    bugbytes333
    Participant

    Ok, starting tomorrow I will take the new dosage. And I am also ordering the Driscoll theory.:)
    So far my bowel movements have been really good healthy and normal as well as my digestion. As for the last 2 weeks I’ve been feeling like I have to keep taking that extra deep breath in almost like I’m hyperventilating and my heart rate kind of all over the place.
    The lightheadedness and dizziness is what really upsets me the most. It makes it so terribly difficult to stand for any length of time. Even laying down in bed I still feel Yucky unwell. Just like you said in one of your videos regarding that topic.

    December 13, 2015 at 5:17 pm in reply to: I'm so lost #5758
    bugbytes333
    Participant

    First of all I can’t thank you enough for taking the time to reply to my posts it means a lot to me. I so badly want to get to pots care. I am going to try my hardest to get there most definitely. And I am going to be ordering the Driscoll theory right away.
    I’m so desperately wanting to get my life back to where it was and stop this madness. I cry everyday about it. I’ve been on the parasym plus less than a week and so far I’m just taking one pill a day to see how things go. I can’t stand taking the beta-blocker propranolol. I’m so hoping that the parasym plus slows my heart rate down. I’m probably not taking enough?

    December 12, 2015 at 12:54 pm in reply to: I'm so lost #5756
    bugbytes333
    Participant

    Hi dr. Diana. Thank you so much for your reply. I had a tilt table test done and just got the results yesterday. Before the tilt table test I had two echocardiograms which showed a normal heart with no diseases. And several EKGs that were all normal as well. I have to say the tilt table test report is very confusing for me. The diagnosis says syncope. I have not fainted since this whole thing started. When I was in the laying down position it revealed normal sinus rhythm with a heart rate of 75 beats per minute. With no other abnormalities noted.
    Evaluation of parasympathetic autonomic function was performed by measuring heart rate variability during paced breathing. heart rate variability during of Valsalva maneuver and heart rate variability autonomic function and assessment for orthostatic hypertension was performed by measuring the beat to beat blood pressure response during a Valsalva maneuver in the beat to beat blood pressure response during a five minute passive upright tilt. Measures of heart rate variability with deep respiration test of cardiac vagal function where in the normal range. There was a normal heart rate response to a Valsalva maneuver the blood pressure sympathetic vasomotor response and phase 2 of the Valsalva maneuver was normal.. there was an exaggerated postural tachycardia on active standing the highest recorded heart rate was 148 beats per minute from a baseline of 91 after 5 minutes of standing. The patient reported palpitations and pressure in the head. There was a transient blood pressure fall with a recovery on active standing. The lowest recorded blood pressure was 81/39. From a baseline of 104 over 57 after two minutes of standing. There was a normal hemodynamic response during the first 5 minutes of passive tilt. It says measures of parasympathetic and sympathetic adrenergic and sympathetic cholinergic function are in the normal range. This is the part I don’t get it. Postural tachycardia as seen on the active standing in tilt table test is a nonspecific finding. And exaggerated postural tachycardia has been associated with a mild or early autonomic neuropathy. Neuropathy that involves the distal vasculature sparing the cardiac intervation, cardiovascular deconditioning, cardiac beta adrenoreceptor supersensitivity, mitral valve prolapse, fever, and volume depletion. We have also seen this response in patients diagnosed with chronic fatigue syndrome. Postural tachycardia maybe a provocative factor for neural ii-mediated syncope. Although syncope was not seen in the study clinical correlation is required.

    December 8, 2015 at 7:50 pm in reply to: Parasym plus #5747
    bugbytes333
    Participant

    Forgot to add that I am taking a beta blocker propranolol which I really can’t stand taking because there are a lot of side effects.

    December 8, 2015 at 7:48 pm in reply to: Parasym plus #5746
    bugbytes333
    Participant

    How many did you take during the day? What time did you take the PP?
    I just started taking the PP today. I took one early this afternoon just to see how my body would react to it instead of 2. And I just took one after dinner. So far so good I don’t feel any side effects.
    Thank you so much for replying and documenting your experiences with pp

    December 5, 2015 at 1:04 pm in reply to: Need help ordering parasym plus #5737
    bugbytes333
    Participant

    Can you please please tell me if it is okay…safe to take with a beta blocker?
    Propranolol?

    November 22, 2015 at 4:50 pm in reply to: parasym plus question #5718
    bugbytes333
    Participant

    if I’m on a beta blocker propranolol is parasym plus safe to take?
    I ordered it today

    Is clonazepam or prozac okay as well?
    I’m off the prozac. I just take clonazepam 0.5mg

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Viewing 14 posts - 1 through 14 (of 14 total)

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