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capriParticipant
Thank you MJ, I’m trying to learn as much as I can about the different options/pros/cons, etc. I appreciate your input. 🙂
capriParticipantI can’t figure out how to post or respond where I want to… (this is a dart in the dark.)
Any navigtion suggestions/advice for a newbie?
Hi Capri, Welcome!! New forums can be so weird at first, but we’ll try to talk you through it, OK? You did great posting a question! To respond to a question, just click “post reply” — this button is on the upper right, or “quote” — down below (if you want to quote the original author first, as I did on this one). The main list of topics should pop up on the first page — just scroll down. Pick a general topic, and then post your question. Does this help? Big hug, Diana
Yes, and Thank you Dr. Diane… I’m learning my way around a little better… I was first concerned about posting under the correct topic area, but I’ve since found where they are listed… Hopefully I’ll remember to post my questions under the category where they are best suited. If I mess up.. plz forgive a newbie. Best to all.
capriParticipantThat happens to me. Some days are fairly normal (no faints) just nausea, pains, fatigue, etc., but on some days, something will “trigger” a sudden drop in my BP and then comes the syncope, tachycardia and fainting. Sometimes I make it to a soft surface to fall or get horizontal on and sometimes I don’t and I get banged up. I’ve been able to correlate the episodes with times when I was having a good day but did too much activity (because I was feeling good,) there are the times when I had been bending, stooping and reaching a lot, gardening, standing in hot weather, or overheating myself within my A/C home, standing in line for the public restrooms at a large event, after taking a shower, at the grocery store, standing while rolling my hair or putting on makeup. 3 times I was sitting on the toilet coping with IBS cramping. Which makes me wonder, Is true POTS an EVERYTIME you rise illness? Something a TTT can markedly reproduce? Maybe I have a remitting/recurring variety. I think I need a heart rate monitor.
capriParticipantHello, I’ve had some vision disturbances, eye pain, double vision, and such over the yrs of dealing with my illnesses, (fm, cfids, ibs, endometriosis, adrenal fatigue, swollen lymph nodes, etc…) but it has started to come on and off more often. Last week. I woke up with blurred vision. I showered, rubbed, blinked, used eye drops and did every thing I could think of to get rid of the blurryness.. It seemed like I was looking though glass with vaseline on it. I had an appointment already scheduled with my Sports Medicine/Chiropractor for that afternoon, due to a bout of torn cartilage in my rib area that he and I had been working on trying to stabilize. I wanted to be able to drive to his office safely. By the time I needed to leave, I realized that not only was my vision still blurry, there was a lot of double vision going on too. It was a clear day outside, so I decided to go forward with the appointment. Reading the traffic lights and signs was very disturbing.. Luckily, he wasn’t too far from my home. He asked for an update since my last visit, I told him the rib cartilage is stabilizing, BUT, today, my vision is very much out of whack. More-so that the normal on and off double vision issues, now I’m very blurry. (I felt like crying.. because this seemed like a new depreciation of my abilities and was very scary to me.) Well, my D.C./Sports med doc adjusted me for my rib situation, and when he got ready to adjust my neck, he said, “Hopefully, this is where I can help you with the vision problem.” I thought to myself “sure” *Not very optimistic in the moment,* where-as I am typically very optimistic when someone is trying to offer assurance of any kind re: relief of one of my medical issue… I guess I just had “the blues” really bad over my new eye presentation. Sure enough.. he found the exact spot that needed to be decompressed.. and within’ an hour of leaving his office my vision problem had cleared up. I was amazed. That was several days ago, and my vision is still not fantastic, but the new, blurry symptom had been resolved by his expertise. I think a nerve was pinched, or fluids were not flowing freely, w.e., and he was able to correct it easily enough because, since I was going to see him anyway that day, the problem didn’t have a lot of time to exacerbate. I’m not saying it won’t return, just that a neck adjustment helped me in this particular occurance, and I was very grateful.
I am severely hyper mobile (9/9 Bieghton), and very “loosey-goosey” as Dr. Dianna says, so from what little bit I’ve read, Chiropractic care can be a “grey area” (in a probable but not dxed EDS patient,) while it gives symptomatic relieve and better circulation in the moment, over the long term, the jury is probably still out on whether it does more harm than good, and in regards to what parts are more or less vulnerable. It would be nice if DR. DIANNA, or anyone else knowledgeable, could weigh in on this for us. (<< PAGING DR. DIANA, PAGING DR. DIANA.) I just wanted to share my recent experience with you in case iT can be helpful in some way. Regards, Kim. P.S. My D.C./Sports med doc is in Bedford, TX if anyone needs to see him. He is wonderful. I've seen chiropractors on and off for much of my life,(since a car wreck at age 15,) and he is by far at the top of the heap. He has a "first do no harm mentality" but is not afraid to think outside the box to help the indiviualized patient. His name is Dr. Richard Chatfield,D.C., Bedford TX.
December 9, 2012 at 5:52 am in reply to: Suicidal thoughts and depression — the new vid is out — What are your thoughts? #3202capriParticipantI could relate very much to the video. Thank you for having the courage to express what so many of us deal with.
October 30, 2012 at 2:41 am in reply to: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? #3089capriParticipantMe… I was told it was part of my occipital neuralgia, there’s ligaments/muscles w/e that travel that path from the base of the neck to the scapula area.
Speaking of bad necks, I also have ringing/hissing in my ears that comes and goes. Sometimes I’m able to stop the hissing and ringing based on the direction I tilt and hold my head. Very weird… and majorly annoying.
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