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CarriejanesartParticipant
Msharmony yeah thanks I’m feeling a little better x not able to draw at the minute as I have passed out and sprained my wrist! X thank you very much for your kind comments xxx
CarriejanesartParticipantHehe Dr Diana thank you xxx
Thank you Barbra for your concern I’m feeling ok and thank you for your lovely comments x
Lab scientist lady thanks you xx
CarriejanesartParticipantOh In reply to the oesophagus question they are sending me for manometry as yes I do have real issues swallowing and I choke it also goes up my noes x I know the test has a long weighting list which I feel is another reason they want to do the tube until they can test how well my oesophagus works x
CarriejanesartParticipantI would love to be able to come to your trial but I’m live in London and just traveling to local hospitals wipes me out for days. Thanks so much tho I wish I could I really do. I am going in to hospital tomorrow for 2 endoscopies one either end I am totally petrified! They keep cancelling but hopefully tommrow it will all be done. I am still loosing weight though unfortunately. I think my bmi is now 13.8 I’m 5 ft 10 and weight is 44 kilos ish. I’m worried as more and more docs are talking about the tube but they think I have malabsorption so I don’t see what difference the tube will make now? X thanks so much for messaging me I’m sorry it’s taken so long to reply. In and out of hospital like a yoyo.
Thank you again xxx
CarriejanesartParticipantOh by the way if you wanted to see any more it’s carriejanesart in Facebook twitter and Instagram xxxx
CarriejanesartParticipantBefore I got really sick I used to run my own little business selling prints and phone skins from Instagram, not sure if you have heard of it before but I was doing very well with 8000 followers. Unfortunately though my pots took a turn for the worst and I haven’t drawn every day for a while I’m luck now to draw once or twice a month, my hands are not what they used to be.
To be honest it really hurts that I can’t do what I used too, don’t get me wrong i still love to draw but they take me much longer. I love the sport I get from my followers and they all know I’m ill and what’s wrong so it’s allowed me to spread more awareness of both pots and eds. I have some speed videos of me drawing and also vidoe blogs of how being chronically ill effects me.
Thanks so much for taking the time to write to me and read my long note xxxCarriejanesartParticipantWow awesome x
CarriejanesartParticipantHahaha lunatics I meant subluxations lol
CarriejanesartParticipantHello
I’m. To sure if its to late to reply to this but I get the most awful jaw tremours when I’ve stood or go to the loo anything can set it off it vibrates my whole head and sometimes it creeps down my whole body. After the full body ones I’m exhausted for hours but as soon as I stand or do anything it will start again. Also I have found I have to sleep sitting up but this really hurts my back and unfortunately my joints still need replacing in the morning. Or also the tremours are so bad sometimes they actually leave me with us lunatics and dislocations. Has anyone else has this? I also have the feeling of overwhelming emotions at this times. I watched your hyperadergenic pots video and I can definatly see that these are what it might be. But I also go the other way fainting cold and hot sweats fatigue and bowel and bladder issues.
The only thing I’ve found that helps is the sleeping upright xCarriejanesartParticipantThanks so much sr member and Newbie xxx it’s getting me really in the mood to create more and requests x
CarriejanesartParticipantI have just found this piece I drew it when I was first diagnosed with pots x I’m so pleased your enjoying my work. If I can only do 5 pieces I would like to place this instead of the diamond x thank you not sure what the limit is x
CarriejanesartParticipantWow! Thanks so much Dr Diana xxx I’m flattered by all this x
CarriejanesartParticipantThanks so much Barbra x
CarriejanesartParticipantThank yu xxx
CarriejanesartParticipantThank you so much xxx everyone xxx
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