Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
I have them too. I also have a Tethered cord,Transverse Myelitis and Mastocytosis.I have been told that they are not lesions,but scarring(?)maybe from Migraines,viruses etc….??? I have to have a full MRI every year to see if anything has changed due to suspicion of MS(01′)Three proteins in my MS profile were elevated. A flare with Myelitis can cause these symptoms as well as the ever chaotic Masto!:sick:
PalominoMorgan, I am new here. Just joined tonite! I am currently still searching for answers. I read your “lesson” on tethered cords and couldnt believe what I was reading! I have a tethered cord(almost same story with Igmo Dr.s! WOW…..) I also have Mastocytosis(GI tract) and Transverse cervical myelitis with years of suspicions if MS. Ive been to several specialists. Cleveland Clinic was the last (5 Dr.s there). Im so Tired of hearing;”Weve never had a patient quite like you”….Ive been feeling really ill this week with some kind of virus(?) and My “left side of my body feels way different” thing. Especially my upper arm,shoulder,elbow and what seems to be Tendonitis again in my thumb,,,aybe a torn labrum in my shoulder again. Who Knows?! I would like to talk more later when Im feeling better. Just wanted to introduce myself. (( :
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross