Hi Dr. Diana.
My 16 year old just diagnosed with EDS, POTS, common variable pain disorder of hand. I have IC. Yes, I think there is a correlation. I knew IC was a syndrome when my urologist didn’t think so. This diagnosis of my daughter has made my struggles over the years crystal clear.
Thank you for being a great educator. I admire your will.
All the best,
This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross