Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Hi, I’m posting from my phone so please disregard spelling & grammar errors…..
My son just turned 22, & has the same condition. Honestly, I never really noticed it until his PCP suspected Marfan….now EDS. It never seemed to bother him, even now. He was always scrawny…but so was I. Even after his teen years he didn’t get the muscle tone like his friends. He is still very thin.
Some things that have developed in the last few years that you may want to watch for is Scoliosis. Since I had surgery to correct mine, I have always checked my kids. His developed after puberty. He also needs to have all his teeth worked on and that seemed to developed over night as well.
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross