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dancechick4728Participant
HI BO728… Thanks for responding… I used the words “lock up” cuz i didnt know how to describe it. But im thinking its either and nerve thing or im subluxing or dislocating someting in my back. It only happens when i streach out my back,like laying on my stomach or twisting my body to fast or far. And there is nothing i can do to make it better:( just have to ride it out. Usually getting out of the position helps a little but not much… Im guessing its due to my EDS but im not sure. Just got diagnosed.
dancechick4728ParticipantHi ScaredSingleMamainMaryland, Thanks for your responce. Could you tell me why a mass cell issue would cause the flushing? I dont think its allergy related because I dont have many allergies. I notice it happens sometimes when i get over stimulated(to much sound and light). however i dont know sometimes its just completely random. I do not take Zantac or Zyrtec. The yawning is horrible sometimes i do it so much that i have to hold my jaw in place because it will start to pop out due to streaching it so many times and my EDS. I dont know why I would have a lack of oxygen in my blood? however last time i was in the ER they had to check my lungs because my oxygen levels would keep dropping below 94. They ended up putting oxygen on me and taking the moniter off me because it kept going off. What is a vasovagal reaction? My cardiologist is getting aggravated because i have so many problems and she cant figure out how to fix me lol. My insomnia is getting worse and worse. I dont even know how im functioning right now to tell you the truth 2 hours of sleep in 3 days.Ugh. I also have tons of stomach issues and have lost 25 pounds with out trying in the last 3-4 weeks! because i cant eat with out running to the bathroom or throwing up. my doctor even had to go up on my beta blockers because all these symptoms were causeing my dysautonomia/POTS to flare up and i was passing out on a daily bases. Ugh I hope i feel better soon and find something to help!
September 9, 2012 at 12:16 am in reply to: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"? #2885dancechick4728ParticipantI always feel sick after laying on my back… When I lay flat on my back I get light headed and the longer I lay flat the harder it gets for me to breath… I feel like there is an elephant on my chest. But the real problem is when I try to sit back up. The longer i lay the worse the dizziness is when i sit up. I have been known to pass out after laying to long many times. I have also experenced those paralyzed moments 2 or 3 times before i didnt know what was happening so it was very scary and it only happend when i ended up sleeping flat on my back i felt like i was awake and wanted to scream but i couldnt. I now sleep with 7 pillows, practicly sitting up to make sure this never happens again!
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