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Last night I had my husband (an RN) do the poor man’s tilt-table with me. I rested for 10 min and by heart rate was around 72-74. Then I stood up. I only made it to 9 minutes standing very still before I was having trouble catching my breath and my chest hurt, then I felt like passing out, so I quickly got back in bed. My husband said I had hit 104 beats per minute. I never thought I had lightheadedness, but realized I usually compensate by moving around. Also, I do get dizzy when I squat down and stand up. Maybe POTS does fit my symptoms. I have a dr. appt this week to explore more.
As for the runny nose, I take nothing. I try not to take meds if I can help it (and especially now as I’m expecting). I do have a prescription for Flonase from a previous doctor.
Can you tell me more about plasma catecholamines? What would those numbers tell me?
As for other symptoms, I haven’t noticed an increase in urination, but I am a bit more irritable especially with repetitive noises or movements. Lack of motivation comes with this along with feeling full high in my stomach and hungry at the same time. I have another type of crash that doesn’t have full body fatigue, (so not usually related to moving my arms above my head) but instead a bad headache with nausea, light sensitivity, noise sensitivity and neck pain. I always have low level neck pain, but with these episodes, I feel more tender. I often have to throw up (can’t be induced) before the pressure will subside and my symptoms release.
I don’t know very much about episodes of mast cell degranulation? But I do have sensitivities to perfumes, lotions, cleaning supplies, candles and dust, which would be increases when I’m already “down.”
Thank you so much for walking this journey with me. I look forward to more suggestions!DanielleParticipant
I am new to the site. In fact, I googled “whole body fatigue from lifting arms” and found this. I got mono 10 years ago, and never fully recovered. My symptoms have changed a bit over time, but the most consistent is that I cannot put my arms over my head at all without completely crashing (usually within a few hours and lasting for at least a day or so). I don’t quite seem to fit the mold for POTS or chronic fatigue or any autoimmune disorder, but I’m going to try to find some more answers. I’ve been to many doctors and no one has been able to diagnose me. When I crash, I also have runny, sneezy nose (anyone else?) I’d be happy to share more symptoms (I’ve been tracking this for 10 years now), if that’s helpful to anyone else. I’d love to hear thoughts!!!