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Dr. DianaKeymaster
Hi Anneal, Your prescribing doctor should be the one to ask this question, as everyone is different! I would recommend a tablet as opposed to a capsule to get started, so that you can break it into smaller doses should you need to! The flexibility of tablets can be great! ๐ Dr. D
May 31, 2020 at 7:25 pm in reply to: Post decompression for Chiari still getting episodes of oscillopsia and associated vertigo #12855Dr. DianaKeymasterHi Chiarimom, I’m so sorry to hear of your son’s struggles! This is complicated and because I hear of so many struggling with these sorts of questions, I will be releasing some videos soon about this. It takes picking apart the pieces very carefully. At the webinar-type videos I will also discuss how maintaining a certain pH level may help keep Diamox working (there is information in The Driscoll Theory for you). You may want to look into Thera pH (at http://www.VagusNerveSupport.com) that can help, too. Gentle hugs to you both, Dr. D
Dr. DianaKeymasterAbigail, I’m so glad you made it to POTS Care! I have a special place in my heart for hyperadrenergic patients! It is a special condition because those adrenergic chemicals make us feel like we could jump out of our skin. We are so happy to work with you on hitting this at the source(s). Hang in, Hon
April 17, 2019 at 3:08 pm in reply to: Time senstitive! Newbie, may have EDS, Dr. wants to schedule venogram with stent for pelvic congestion syndrome #6365Dr. DianaKeymasterHi Paula, I’m sorry to hear that you are having to try to figure all of this out yourself! I think many of us fear Vascular EDS, but in reality, it is rare. Most people have a clue by their family history of vascular events, or they have a specific LOOK (or phenotype). They have sparse hair, thin lips, thin and pinched nose, and almost transparent skin — you can often see most every vessel through their skin. I don’t believe it is usually necessary to test for Vascular EDS without that “look” and with no family history, but if it needs to be checked, there is genetic testing for it! You can get a solid answer for that type of EDS. I hope all goes well for you! Gentle hugs, ๐ Dr. D
Dr. DianaKeymasterI’m so sorry you are dealing with this! This is Chiari, certainly. What I found is that high intracranial pressure can worsen Chiari AND can mimic Chiari. My children and I were able to avoid invasive surgery by treating the high intracranial pressure (that wasn’t evident on the MRI). This is all explained in The Driscoll Theory book. Do you have it? Please keep us posted! Love, Dr. D
Dr. DianaKeymasterThis was an incredibly difficult journey for my family, and it is my life’s mission to reveal how awful this horrible beast is for so many. I’m so sorry you are suffering, my friend. I hope the information I have released is able to pull you out of the downslide. Gentle hugs…
Dr. DianaKeymasterHi Zaghost, If you find yourself still struggling and would like a team to dig into your case to figure out the underlying problems and how to best treat it, please reach out to us at http://www.POTSCare.com It’s what we do and we’re good at it! xxoo
Dr. DianaKeymasterHi there, Peach Pear! Parasym Plus will not react with Plavix. ๐
Dr. DianaKeymasterHi Diane, I am so sorry to hear this about your son! I can’t tell you what is going on without taking a close look at everything, of course, but like you I would also be concerned about high intracranial pressure. We ran three different studies on this potential issue and I don’t know which study you were in, but in our last one we treated folks with Diamox to help us diagnose these difficult cases. Diamox can be used as a diagnostic tool (and my neurologist uses it as such with his patients, too). But a close evaluation is always required first. We see SO MANY cases where this IIH doesn’t present as typical, but we can usually find evidence of it with some sophisticated ocular studies and review of the brain MRI. If you get stuck, we offer evaluations/treatment for IIH at POTS Care. You can call us at 1-866-349-9905. We’d love to see you again! xxoo
Dr. DianaKeymasterHi Anneal, We noticed the same thing since we tried changing the excipients just a bit. We had it tested, and all active ingredients are just fine, but we are changing the formula back to the original one (with a bit more magnesium to make it less likely to do this). Meanwhile, keeping it in the bottle is good (or what a great idea to keep it in the refrigerator)! ๐
Dr. DianaKeymasterThank you for asking! We were just working on this, wrapping up some of the statistics. It looks like we may need some more “age-matched normals”, but we have plenty of patients who have volunteered. We will more formally announce this when we have confirmation from the statistician that we have enough normals. Thank you! ๐
Dr. DianaKeymasterHi Anneal, these sorts of injections should be “epidural”, above the dural sac, if you will and shouldn’t lead to spinal leaks. Having said that, a not terribly uncommon unwanted side-effect can be an accidental nick of the dura, causing leaks. These usually self-seal, and it sounds like you are not experiencing a leak now. Yay! ๐
Dr. DianaKeymasterHi Laura, I’ve seen people do it, and it may be better than nothing! A couple of potential issues, though. One is that one of the ingredients is about the size of a dust particle, and yet it must be in every capsule (manufacturers hate this). So if it clings to the side of the glass, you don’t get a critical ingredient. Secondly, please plug your nose! This doesn’t smell good (one ingredient is sulpha-based). Hugs, Dr. D
Dr. DianaKeymasterIsn’t that something? It’s such a common fallacy — to think that histamine means mast cells! You are certainly not alone. I addressed this in a couple of posts. Here’s one: here
Dr. DianaKeymasterThat just warms my heart, Anneal! It is so great to hear that what I’ve shared is helping others. xxoo
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