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Dr. DianaKeymaster
Hi Laura, I guess it goes without saying that you’ll want to work with your doctor on this! It can be tricky to figure out if Diamox is needed (or if/when you can stop taking it). That’s what many of those MRI’s and ocular images are for (more info ad nauseum in The Driscoll Theory). Your doctor will discern whether you could have external communicating hydrocephalus, IIH, a small Chiari, or a condition that could mimic any of these. The details are important! For more information to help you through the Parasym Plus questions, please check out http://www.ChronicDiseaseDigest.org. BTW, I’m curious why you think EDS is causing your symptoms of high ICP? ๐
Dr. DianaKeymasterHi there! I’m afraid I never got any help from this supplement and like many of others, took some supplements just because I HOPED they would help! As answers came, it became easier to figure out which ones I could skip. You may find this post helpful about MCAS and POTS:
IS it MCAS or a condition that mimics MCAS. Hope that helps! ๐Dr. DianaKeymasterHi Wendy, this sounds like a vitreal detachment (assuming your doctor ruled out retinal detachment). Retinal detachments need to be addressed on an urgent basis, but most vitreal detachments are benign. They need to be monitored as long as you are experiencing flashes of light, though, to be sure they don’t result with a retinal detachment. I hope this helps! ๐
Dr. DianaKeymasterI’m so sorry for your pain! I always recommend a second opinion if need be. Sadly, when looking at MRI’s sometimes the whole series is needed to evaluate, rather than rather random shots. So I don’t think anyone can give you anything concrete from these images. What is certain, though, is that you hurt. At a minimum, you could consider a second radiologist’s opinion?
Dr. DianaKeymasterIf you have congestive heart failure or angle closure glaucoma, I *really* hope you are working closely with your doctors! ๐
March 13, 2018 at 4:05 pm in reply to: New Member, Hope It's Ok To Ask For Help With A Few MRI Pics? #6263Dr. DianaKeymasterHI and welcome to the forum! The only thing I can tell from these scans is that the pituitary gland is slightly squished (we call it a “partially empty sella”). This can be from high intracranial pressure. Can I assume you have a copy of The Driscoll Theory? It describes the symptoms of high intracranial pressure for you — worth a look! ๐
Dr. DianaKeymasterCipro is an antibiotic (not an antihistamine), but I’m not sure what you are asking? What condition are you trying to treat? Thanks! ๐
Dr. DianaKeymasterI understand your confusion! What I’m trying to say is that if my CO2 went below 22 or so,
my intracranial pressure symptoms came back, as well as my CSF leak! It just meant I wasn’t fully controlling my intracranial pressure unless I kept my CO2 (a measure of alkalinity/acidity) in line.
Hope this helps! ๐Dr. DianaKeymasterYes, that’s right! An electrolyte panel should include both CO2 and potassium (among others).
xxooDr. DianaKeymasterHi Yevette, Headaches come in all shapes and sizes and for many reasons — this secondary headache may not be pressure related, in fact. It could be a side effect of Diamox, or even due to your brain shifting position from the change in pressure. You are on a small dose, and I agree with your doctor that it would be a good idea to try another dose about 4 hours after taking your first dose.
If the headache goes away, you know what you’re dealing with! I hate to keep preaching this, but please make sure that someone is watching your electrolytes, OK? Gentle hugs…Dr. DianaKeymasterHi and welcome! What you want to consider is if something you are taking in addition to Parasym Plus may be working against you, or if normalizing these levels means you don’t need other medications/supplements (that may now be working against you). I’m SO GLAD it is helping your GI tract!
It took us a while to realize that the dry eyes and huge pupils were also going away! Big hug…Dr. DianaKeymasterYES! I often hear from patients that when they go on vacation at a high altitude they feel better (as do I). It also explains why so many of us CRASH and burn when the barometric pressure drops!!
๐Dr. DianaKeymasterNancy, when I first took Parasym Plus, I needed FIVE doses! It was so weird, because within 20-30 minutes I could feel my ability to think (and to be AWAKE) improve. After about an hour and a half I felt like that was all I could do, and I needed to sleep. Instead, I took another dose and BAM — I was back! Over the next few days, I was able to take fewer doses and stayed at three doses a day for quite a while. Eventually, I took two and did fine. If you take it after about 4pm it can keep you awake, we found. Otherwise it is fine. This is what my son needed to begin to absorb nutrients again and he was able to recover from osteoporosis. It was such a scary time, but I’m happy to say it is now behind us. Hang in, my friend. ๐
Dr. DianaKeymasterThank you for your kind support, Leroy! xxoo
Dr. DianaKeymasterHi Nancy, Such a great question! It can be confusing, so let me see if I can clarify. Parasym Plus boosts acetylcholine, which stimulates the vagus nerve. The vagus nerve supports all aspects of digestion and allows a slower heart rate (it supports the parasympathetic nervous system — the system that calms the body). But it ALSO crosses the blood-brain-barrier to boost acetylcholine for the brain with improves alertness, short-term memory and cognition. You may have seen how I just couldn’t stay awake or think due to extremely low acetylcholine in my brain. Not only did my GI tract begin to function again, my brain popped back to life! At first, I needed a few doses during the day — I could feel it wear off, but know that I was extraordinarily sick at that time! I hope it is hugely helpful for you, too. Hang in, my friend. ๐ .
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