Forum Replies Created
March 10, 2015 at 12:37 am in reply to: Am I dreaming?? #5352
Lol. That’s funny.
Blessed are the flexible, for they shall not be bent out of shape.
I would never wish the pain I have on anyone.
Yet it was nice to find a group that made me feel like this wasn’t all in my head.
Blessings to all.February 25, 2015 at 2:57 am in reply to: Help with what medical test to have done for painful eys #5322
Apparently I have an infection in both eyes. They prescribed antibiotic eye drops with steroids and suggested I get treated for the upper respiratory thing I’ve got going on. I’ve been treating it for three plus years consistently with either antibiotics and/or homeopathically.
My eyes have never hurt this badly though.
As far as the bladder pain and other stuff, I’ll tell my story which includes my bladder and hoo ha etc etc, in my next post. The day was very trying and tiring.
Tue I’m taking a vacation from my life so hopefully no medical stuff tomorrow.
Blessings and gratitude.
EchoFebruary 24, 2015 at 3:20 pm in reply to: Help with what medical test to have done for painful eys #5319
The pain got so bad that when I went to the doctor for the referral that the doctor came up front top see me. Flash light in hand and pointed. She sent me to the ER. It’s not a detached retina 😉 The ER doc set me up with an emergency optimoligist appt. He thinks it might bee an infection or fluid. I’m heading there now and will report.
On a side note. I just want to cry today. My bladder/hoo hurts and I just spoke to the genetics dept at ucsf. They’ve done nothing for6 months and there is a 6 month wait.
Another 6 months of nothing. :/February 12, 2015 at 4:06 am in reply to: Ongoing neck problems with normal mri #5297
By the way Seanos , the discription of your head pains sounds just like mine. I’ve pretty much given up on doctors or trying to get them to help me. (They all just seem to want to put me on pain pills instead of figuring out what’s going on) I’ve been getting MRI scans for years and besides bulging discs most of my symptoms (bizarre sounding as they are all make sense now that I’ve been diagnosed with EDS. Tremors, headaches in the back of head, eyes etc etc.
Hope you find something that fixes the pain.
This is all quite new to me.
EchoFebruary 10, 2015 at 11:40 am in reply to: Ongoing neck problems with normal mri #5286
I meant chiari
Here’s the video and the finding of the chiari takes place after 17 min into the video
https://www.google.com/url?sa=t&source=web&cd=2&ved=0CCMQuAIwAQ&url=http://m.youtube.com/watch?v=qBGjQT9jpc0&ei=TjDaVIKvOpfVoAS44oGIAQ&usg=AFQjCNFFwqJV3pRczZpcmKDb_Br_zmDOPg&sig2=K4b4AFFwLC8XkAA1mv0oKwFebruary 10, 2015 at 5:44 am in reply to: Ongoing neck problems with normal mri #5284
Look up EDS Mystery Diagnoses… there was a teenager that didn’t have the normal bulge but once they opened it up she had (I don’t want to spell it wrong)… Look up the video. It will show everything.