Forum Replies Created
-
AuthorPosts
-
September 24, 2015 at 4:54 pm in reply to: Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative? #5659FlourishingLight711Participant
Hi Dr. Diana! Thank you for the reply. Sorry it took so long to check in. I have not read your book, yet, but now that I know you have a book, it is on my list. Thank you for letting me know. I haven’t tried Diamox, but will look into that. I can’t usually tolerate any medications.
UPDATE: I went to the cardiologist, today. He barely looked over my paperwork, then came over, took my pulse, seated, and asked me to stand up, again. He then asked, “Have you ever heard of POTS?” I was stunned! I replied that that is what I think I have. He said he thinks I might have it, too.
Then, he pulled out the report from the ANS testing, and he said that they made a negative diagnosis on dysautonomia based on what my blood pressure was doing, but he sees that my heart rate WAS an issue during the test, and he noted that right there in his office, my heart went from 80bpm sitting to 115 standing, in just seconds after I stood up. He said that isn’t supposed to happen, and that my arrhythmias during the ANS testing, 6 weeks ago is also telling. We’re doing and echo-cardiogram and 24 hour heart monitor, next week. He is leaning toward POTS, though.
So, I may have my answer, soon, and then I will be able to get on with doing whatever treatments I need to do.
Oh yes, and he also suggested that I might want to look into Mast Cell Disorder. He said he had one other patient with POTS who got a lot better when she started to treat for Mast Cell Disorder.
This is all very new to me, so I have a lot to learn. Thank you for having this place to exchange information. It is invaluable!
FL
September 10, 2015 at 1:16 pm in reply to: Dysautonomia, Vagus Nerve Impairment…but ANS testing showed negative? #5653FlourishingLight711ParticipantOooops, I meant to put this in the POTS section of the forum. Can it be moved there? Thanks!
August 22, 2015 at 10:14 am in reply to: Multiple Chemical Sensitivities and Electric-Hypersensitivity #5630FlourishingLight711ParticipantThank you. It seems that any kind of stimulation is not my friend. Even positive over-stimulation sets off symptoms. I had the ANS testing on Wednesday, and now (Saturday), I’m still battling with a feeling of over-stimulation and symptoms. Sheeesh!
Blessings!
SyrenaAugust 21, 2015 at 2:41 pm in reply to: Multiple Chemical Sensitivities and Electric-Hypersensitivity #5622FlourishingLight711ParticipantHello friends! Just to clarify, this forum is designed for folks with “invisible illnesses” — including but not limited to Chronic Fatigue Syndrome, POTS, Dysautonomia, Chronic Lyme, EDS, gastroparesis and others. We see a fair amount of EDS folks popping on because many EDS folks develop POTS and because my kids and I all have EDS (and suffered from POTS). Does that help? All invisible illnesses are welcome! We included MS in many of our studies and have some thoughts for those folks, too. Big hug,
Thank you, Dr. Diana! Would you be able to shed some light on my original question in this thread? I appreciate all that you are providing, here, and on Youtube.
Blessings!
SyrenaAugust 20, 2015 at 1:01 pm in reply to: Multiple Chemical Sensitivities and Electric-Hypersensitivity #5610FlourishingLight711ParticipantEDS is short for Ehler-Danlos syndrome, which is the main topic behind this forum, I believe. : )
Best wishes!
This is the POTS section of the forum, actually. So, happy to report it is in the correct location. Thank you, again for your reply. I watched parts of the video you posted. It is interesting, and there may be some Mast Cell issues, but I wonder if they are triggered by an autonomic nervous system issue? I guess I have more learning to do.
August 20, 2015 at 12:58 pm in reply to: Multiple Chemical Sensitivities and Electric-Hypersensitivity #5609FlourishingLight711ParticipantThank you. I thought that this forum was for dysautonomia and POTS. Sorry if I posted this in the wrong place.
I have seen a couple of Dr. Diana’s videos on Youtube, which is why I came here.
No I do not have EDS, as far as I can tell. Thanks again for the reply. I’ll have to see if there is a more appropriate place to post my question. For anyone who is interested, I did find this link, where it is mentioned that some people with POTS do report having Multiple Chemical Sensitivity and Light Hyper-Sensitivities.
http://www.dinet.org/index.php/information-resources/pots-place/pots-symptomsAugust 20, 2015 at 12:11 pm in reply to: Multiple Chemical Sensitivities and Electric-Hypersensitivity #5607FlourishingLight711ParticipantThank you. I will check that out. I don’t know what EDS is. I have heard of Mast Cell Disorder, but using the anti-histamines didn’t help much. The doctor I had, years ago, thought it might be something to help me, but I was getting worse even on those. I think you mean the H2 anti-histamines, correct? I became allergic to benedryl, a couple of years ago, which I believe is H1.
I appreciate the reply and will look into it further.
Syrena
-
AuthorPosts