Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Hi Dr. Diana & others. I believe I may be able to help you, and at least point you in the right direction. If you will go here: awellworld.org you find find a treasure trove of information that will help you. There is a case study where a patient had leaking CSF, and other symptoms, and was able to be cured of everything. The paper can be downloaded for free with simple registration. It could be used to show a doctor what was experienced, why it happened, and how it was treated. That link was mentioned on the “Alzheimer’s” page. There is also a leaking CSF poll on a page categorized “Other” illnesses. I know it has a lot of potential to help a lot of the issues I’ve seen you guys talking about, and shed light on everything.
Really hope this helps you. Wish you all the best too. 🙂
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross