Forum Replies Created
-
AuthorPosts
-
JessicaLeighParticipant
Thanks! I’ve often wondered about my yellow spots, they just seem so.. odd.. I have them on both eyes, and while I’m not really sure if they come and go, I’ve noticed they’re always in the same exact spot. Another funny bit I’ve noticed recently, when I’m jaundiced (as I am now, with some crazy gallbladder issues..) you can’t even see it in my eyes due to the blue sclera, unless I look to the side and then wow! …my whites definitely show it.. Strange..
JessicaLeighParticipantAhh, gotcha, thanks 🙂 Yeah it’s not always the prettiest of signs, but nonetheless, good for diagnosis I suppose!
JessicaLeighParticipantHmm, so I know close to nothing about mast cell disease, nor its relation to EDS, but from what I just read above, it seems Prednisone can aggravate these symptoms?
I’m wondering because I was given a round (two actually, but only took one full dose pack) of methylpred last summer for my severe lower back pain (early onset spinal arthritis) and it was around/after that time that my everything (MVP, joint pains, dysautonomia symptoms) began to really act back up like they haven’t in ten years… Interesting.
JessicaLeighParticipant.
JessicaLeighParticipant.
JessicaLeighParticipantI get both of these, the very short bursts of rapid nystagmus (my poor Siamese kitty has this too, but hers is much slower! lol) usually occurs when I’m either very tired, on the verge of an intense migraine, or WAY past my level of stimulants.. I take 70mg of Vyvanse daily and thanks to my brain fog have definitely taken a double dose on multiple occasions! (I believe that this is also a common occurrence for abusers of stimulant drugs, so I wonder if there is a correlation between dysautonomia, a flooding of adrenaline and bouts of nystagmus?)
I have also had visual snow as long as I can remember, in exactly the same way as Maffin mentioned.. I also have photophobia and it is much more noticeable after flashes of bright light or staring at a computer screen before bed. (I remember watching the tiny red dots as a kid and trying to make them fly across the room when trying to fall asleep at night.. lol)
I always assumed these were normal things, I’m starting to realize just how abnormal I might have been, haha 🙂
-
AuthorPosts