Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Megan, How disappointing! It sounds like he is a rare example of having
EDS making him LESS understaning, because he doesn’t understand how different
each case can be. I’m not a doctor, just a mother of child with similar symptoms,
however as I was reading your post EDS/POTS came to mind. I believe that
the primary condition of EDS causes a domino effect that leads to brain/spine
pressure from the unstable ocipital antioaxel ligament. That the brain pressure
leads to Dyaautonomia/POTS, that causes a myriad of symptoms, and that no two
people present exactly the same. Good Luck, never give up! My daughter is still
being told its psychological even though she has been dx with hypermobility, and POTS.
The doctors didn’t discover the POTS, I did from researching, then had to push for her to
be tested. It took asking 4 doctors, one tested her wrong, so said she didn’t have it.
Also its common for symptoms to get worse during puberty, and menstration.
I’m having the same problem, I think I will try segments also. I think
it gets rejected at a certain length. Its very frustrating when you spend so much time typing
to share the facts, in case someone has a similar experience, or answers. Jessica
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross