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I’m so sorry to hear this… I was SO AFRAID of a brain shunt and Dr. Diana told me her story about how she avoided shunts and cervical fusions with Diamox – it lowered my CSF pressure enough that we were able to skip the shunt. YEA! Shunts, frankly, r pretty archaic — they need to work on their technology — even the doctors agree with that! I wish I could help you more, but my heart breaks a little bit when I hear about shunts and their problems. 🙁
YES!! I am bendable — always have been. It’s been great (up until recently!) for dancing, but now, I can barely MOVE without hurting. OMG — YES! I will send the symptom checklist to you. I seem to have 80% of the symptoms on this list. FREAKY! My doctors would NEVER BELIEVE ME if I told them all of these symptoms!! Never in a million years. They already think I’m a head case.
Does anybody here have Lyme Disease or have you considered a diagnosis of Lhyme? I need to figure that out, too. I’m so glad I found this site!! Thank you, thank you!!!!
Holy smokes. This sounds like me, too. I’m new here and am trying to figure out WHAT I HAVE!! I am tall and skinny(ish), have no muscles to speak of, have what looks like autonomic dysregulation, and some folks are wondering if I have Lyme Disease. Could I have EDS with the tall/skinny genes? Mast cell medicines are the only thing I’ve found to help me so far (thanks to Dr. D’s videos!). My doctors think it’s “anxiety”. Give me a break. Oh, and I puff up like a blow fish pretty often. My feet are flat and my perky personality is becoming the devil-incarnate. Help?