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I can completely relate to your experience with Calcium! I have EDS and Mast Cell Activation Disorder. I was just recently diagnosed with MCAD only after receiving IV Calcium infusions in the hospital for 4 days straight. I had a thyroidectomy and my calcium levels dropped following surgery requiring me to be admitted. I began having strange symptoms even in the hospital like itching and flushing but it got worse over the next week once I was home. I had hives all over my entire body and angioedema. Within a week I ended up having an anaphylactic reaction requiring an epipen injection due to my throat swelling shut. That was the first allergic reaction that I have ever experienced in my entire life. My Rheumatologist is very good and she suspected MCAD after that reaction so she sent me to a MCAD specialist in Atlanta which led to my diagnosis. My thyroid surgery was early in September and because of the Calcium reaction my body is still completely flared up and in so much pain. I will definitely never take Calcium again. I am sorry that you are having such a hard time. It is nice to know that we are all in this crazy thing together!
