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Jrl_3327Participant
Hi I just got an order for blood work to be done yesterday from my pcp. I have an appt next wed. with a endocrinologist. Back in July 2011 I had my carpel tunnel Dr tell me he wouldn’t perform my surgery bc he tought I had something else going on besides carpel tunnel such as Addison.. nothing else was ever mention about it again until this past week. Its been proven that I do have the pseudotumor cerebri and the diamox zyrtec and zantac have all help tremendously as long as I don’t allow myself to get to acidic. Thanks to u on that Dr. D.. but I just all of the sudden have gotten so fatigued the past month no motavation what so ever and if I could I would sleep 24hr it seems along with no appetite at all the feeling of nausea and vomiting and left back & abdominal pain worse than my normal ha!. So I mentioned this to my pcp and also mentioned how my scars have went from white to brown, how my gums have even went from pink to dark brown all over time and he said it sounds like Addison’s. He gave me a dose some kind of cortisol steriod through my vein with saline after. And within 10 min I could actually stand up straight which I haven’t been able to do in a very long time. He just didn’t explain how long will that steriod last and also now that I got the medicine in me when I go get my blood drawn today will it be thrown off. Should my blood have been taken 1st or will it not matter for the blood test results? Ik my sodium has always been low I’m told to add salt to my diet but the problem is I can’t eat I’m I am now 7lb lighter than Iwas 3wks ago. I will keep u posted after I see the endocrinologist next week & see if I get some more answers!
Thanks Jamie:)Jrl_3327ParticipantHi Dr.Diana, I just watched your video on immune system challenged and I just did the spit in the glass of water and then I had my son do it. Mine looks a little worse than the photos you showed in the video very ummm.. like webbed from the top down to the bottom of the glass very very weird ha! then my son did it and his did absolutely nothing the water is clear. I also have a white coat on my tongue and have for awhile now no DR has ever said anything about it. Ha I wish I could have sent you a photo of mine its not as bad as you described your families. but it is way worse than the 2 photos on the video.
Jrl_3327ParticipantThank you for the info. I will check out that video now. And any new info or Doctors that may possibly help me I will for sure keep you posted. Thanks for all your hard work and effort it’s greatly appreciated!:)
Jrl_3327ParticipantHi my son is 11yrs old and has had a geographical tongue since he was a toddler. He never had any problems with it until about 6-8wks ago he had differentshape sores all over his tongue that he said were painful I took a pic of it so I cocould show his Dr. bc I didn’t know how long they would be there andof course they came and went away a few ddifferent times. Also around the same time he had woke up wi th his one eye puffy and swollen it looked as if he had been hit in the eye. Also he woke up a few times with swollen lips and a few days ago out of know where his 1 hand got puffy and he said it was itchy and felt weird. I don’t know if any or all of these are any connection with each other or not. They all come and go and just started all around the same time. I showed his Dr the pic of his tongue and he said he had never seen anything like it and has referred us to a ENT. Also I asked his Dr to start him on zyrtec instead of the claritin he was on in the past and all of his symptoms have improved. But I will say there has been 4 different days that he missed his zyrtec and every time one of thoes symptoms has returned. I myself take zyrtec and if I miss my does I notice notice it before the afternoon. I know it sounds weird but it seems to me that zyrtec helps maybe bc we have too much histamine but I could be wrong. How do you know if you have too much histamine’s? Is it a ENT who can help with this?
Jrl_3327ParticipantHi I also have been diagnosed with IC/bladder pain syndrome I get the urgency to go and I have severe bladder spasms. Sometimes I use the bathroom 10x in less than an hour. I also get urethra pain at times. And I get goose bumps mainly on my arms daily I notice sometimes after I urinated I gets chills and its not even cold out. Don’t understand it! When I feel like I have a UTI it comes back normal this started when I was a child then it went away for a few years now it has returned out of control at age 32 I’m now 34. Still trying to find the right treatment. I also get severe left abdominal pain.
Jrl_3327ParticipantHa! Yes the back pain;) I just wanted to say that I did try baking soda last night and this morning and I will say just over night my stomach feels waaayyy better along with the mild pressure seems to be way better today idk if it works that fast but it seems that way with me.. So much help once again! :).I am making the choice to not have a LP my physiatrist agrees 100%. I myself have never been in agreement with any puncture in my much falling apart spine after trying epidural injections causing more pain 5yrs ago. So I am very skeptical of what procedures to do & not to do. I can’t wait to see what you have on the IC please keep me posted! I give u thumbs up for everything you are doing not only to help yourself but to help others also♥!!
Jrl_3327ParticipantBaking soda I meant! 🙂
Jrl_3327ParticipantThanks for some input! Greatly appreciated. . I do remember watching your video I believe backing soda was mentioned I will go back and rewatch it. Also I will keep you posted on how things are going. Your opinion means the world to me:)
Jrl_3327ParticipantI swear last post Ha! My CO2 last month was 21.
Jrl_3327ParticipantSorry I forgot to mention earlier that when I say I have more energy in the morning that is more so that I’m not as fatigued I do have symptoms from the time I wake up til the time I go to sleep. And before the diamox my eyes felt like they were giong to pop still nausea and bowel issues but my head didn’t start to feel heavy til about 1pm or so and I’m more stiff in the afternoon aposed to 1st thing in the morning. Early morning my eyes would feel as if I was look through gas like blurred. But I don’t get those symptoms since diamox and the 2 Z’s. The shoulder and neck pain comes and goes still its not no where close to as bad as it was previously. My mri I had a few weeks ago says there’s mucosal thickening seen involving the right maxillary sinus.. not sure what that means I’m not sick I don’t get sinus infection maybe 1x a yr. All of my children do but its not common for me. I do get pressure under my eyes when I was getting bad migranes and or eye pain but no infection that I was ever aware of. My neurologist says its normal but I’m not quite sure about that. Would it be an ENT that I would see? Today for the 1st time both sides of my face had felt tingly and numb just under both eyes. It went away after 30min or so.
Jrl_3327ParticipantAlso my oldest daughter and my sister have been diagnosed with Reynolds my son and oldest daughter both have POTS. My son had near fainting spells my daughter just started passing out after going on rides at a carnival she just got diagnosed 3wks ago. She gets migrains like I use to and she is very fatigue with no exercise tolerance like me. My oldest was also born at 28wks due to ruptured membranes 16years ago at that time I was told unknown cause. My son was 4wks early and my youngest daughter was 6 wks early. We all have hyperextened joints. My oldest does have a couple wide scars and what ever thescars are called that bubble up( keloid) ik I miss spelled that but she’s the only 1 with different scaring. She also has bladder problems. My son goes for a sleep study next month to check for sleep apnea.
Jrl_3327ParticipantHi Dr Diana, yes I have very dry dry skin. I had itchy legs and I got a spot the size of a nickle that is a darkened area it started on the top of my right foot about a year ago it would itch after a few months of itching it the size went from a circle and the a straight line went up my the front of my leg in total length its a straight line with a circle at the bottom and its probably about 3in or so. My Dr has no idea what it is. Once I started the zyrtec it hasnt itched once. Now my scalp has always been dry and flakey big flakes and itchy at times. I would itch it til my scalp was sore the zyrtec also stop my scalp from itching but the flakes are still there. My skin its extremely dry always has been I put expensive lotions on at least 2-3× a day but 30min later u can’t tell I can take my finger and write on myself. I used to get white dry circle patches on my upper arms haven’t had them since last summer although my son and youngest daughter stil get the dry white patchy circles on their face. Idk if this makes a difference or not somethings are harder to see on my skin, my mother is Caucasian and my father is African American. My children’s father is Caucasian so my oldest daughter and son have pale skin tone and me and my youngest daughter have medium skin tone. My scars used be white up until about a year ago now they are dark brown. I was told years ago I have dermatitis but haven’t been to a dermatologist in over 8yrs. My youngest sister had a bad out break of psoriasis at age 15 she was covered from head to toe. She is now 24 and has it not as severe but her scalp and elbows are still covered. I get outbreaks of flakey patches on my ears at times. My shoulders get these things that look like pimples but there not regular pimples its almost like they’re hard but have tiny blister over them they come and go. If I’m wearing even cotton pants that are lose they still leave lines or grooves in my skin that take about 10-20min to go away. What I’m confused on what is the difference between mcas and mcad? I don’t think I have full out mast cell but something associated with it. Who knows I could be way off track. I’m just asking for opinions so I can go in the right direction. Can interstital cystitis have any involment with the GI System? I’ve been told I have IBS by 1 dr and IBD from another. Non of the meds they have tried in 5yr has help with my Bowles or digestive track. I worked as a C.N.A for over 13 yrs I took care of many patients with colostomy bags and that’s one thing I want to avoid. As the days go on & I countlessly go up to 15+ days with no emptying and some days I go 3mo with nonstop diarrhea but the not goin at all is happening more and more how healthy can that be for a persons body! Does anyone know a name of a medication that might help my stomach or intestinal problems that I could suggest to my pcp just to see if its any relief? One more thing my son has a geographical tongue never had any issues until about 3wk ago he gets these circle shape inflammed areas all over his tongue that became painful I took pics to show his dr bc they come for a day or 2 then disappear then return again his pcp said he has no idea never seen anything like it so I asked him to switch he claritin to zyrtec just to see if it does something. He has been on it about 4-5days now and hasn’t had a flair up on his tongue at least not yet..
Thank you!
Jamie:) -
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