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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Julie52

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Viewing 6 posts - 1 through 6 (of 6 total)
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    Posts
  • September 30, 2013 at 8:54 pm in reply to: Mosaic I titled Her Beach #4463
    Julie52
    Participant

    It does Lab Scientist Lady. Each and every stone recounts the days when I could still walk and how much I love that beach.

    September 29, 2013 at 10:31 pm in reply to: Mosaic I titled Her Beach #4448
    Julie52
    Participant

    Thank you very much. 🙂

    November 19, 2012 at 2:22 pm in reply to: Shoulder — fibrotic bands? #3152
    Julie52
    Participant

    Subluxation. THAT is what the orthopedist called it when I came in with my shoulder pain. I’ve been trying to remember. 😛

    November 17, 2012 at 12:29 pm in reply to: Suicidal thoughts and depression — the new vid is out — What are your thoughts? #3143
    Julie52
    Participant

    I believe MY depression is a symptom of my disease (MS) and not a reaction to having my disease. Antidepressants do help.
    When I describe various symptoms to different doctors, normally my frustration is that they automatically assume it is my MS. But with depression they assume it is strictly psychological.

    November 17, 2012 at 12:17 pm in reply to: Shoulder — fibrotic bands? #3142
    Julie52
    Participant

    I have had chronic shoulder pain which flares and worsens and then gets better but never quite goes away since the early 1990s, just a couple years after I was diagnosed with MS. The orthopedist I saw at the time didn’t know what it was but was intrigued by the strange clicking and popping that occurred when he moved my arm behind and above me. He even brought colleagues in to witness the strange occurrence. He told me he had only seen that particular phenomenon in football players and the like from traumatic sports injury. Oh, he had me feeling so special. (Sarcasm should be noted.) He tried different massage techniques and had me do different exercises and it did eventually get better but when it came back I didn’t bother making another appointment with him.
    I suppose, from reading the description, it could be ‘frozen shoulder’ with the exception that mine never goes away. Maybe because, with my MS, I now rely on my arms so much more. (Have been in a wheelchair full time since 2010.) So my shoulders never get a chance to rest.

    November 17, 2012 at 10:21 am in reply to: Weird changes in my nails #3141
    Julie52
    Participant

    I too have vertical ridges on my nails. My thumbs are the only ones with half moons. They look like the Red Luna example from your nail disorder link. Some do grow flat but not all. They chip quite easily and as someone else mentioned they seem to flake as if in layers.
    One thing I did notice is that when, for about four months, I took nutritional supplements and vitamins daily, the half moons began to slowly reappear, starting with the index finger. They never did appear on my pinkies.

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Viewing 6 posts - 1 through 6 (of 6 total)

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