Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
YES, I had a similar experience. I accidentally found out that I was Dxed with LV diastolic dysfunction when I asked for a report of my echo. No one thought to tell me either 🙁 I came to an enlightening realization about this presentation that I want to share in hopes that it will help others.
At the time I presented with LVDD; I was having a reaction to a beta blocker that I had recently been prescribed for severe Reynaud’s. I should have known better, BB’s and I don’t get along well. My allergic reaction presented with a numbness in my chin, that progressed up my face and into my mouth. Once my lips, and throat began tingling and going numb; I finally realized I was having an allergic reaction. I stopped the BB and had the echo redone a few weeks later- PERFECTLY normal!!! In my case, the LVDD was the manifestation of stirred up mast cells.
BTW, I am DXed with MCAS, POTS, NMH, and an unknown connective tissue disorder (most likely EDS III.)
Julie
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross