Forum Replies Created
May 4, 2016 at 9:33 pm in reply to: question RE: c02 level at 21 and on diamox #5944
Hello Dr D!
Thank you for answering. I saw the tablets on your website but they are no longer available at this time, so I also looked into the pills that are right next to the tablets on page 6 of the store.
I know every person is different, but what is the baseline of how much I should be taking? For instance, if I buy the bottle of 1000 pills, how many pills should I take a day? …. And should I spread the dosing throughout the day?
Also, if I decided just to use baking soda, how much of that would I use???
Since they are in different forms, I am not sure what the equivalent is, if that makes sense.
I do apologize if my post does not make much sense… I am plaques with fatigue 🙁
So, if you, or anyone, can enlighten me on how much to take for either the sodium bicarbonate pills or just plain baking soda, I would be very appreciative.
I am worried I will take too much…
Thank you again!!!
Kelly 🙂December 11, 2015 at 11:08 pm in reply to: parasym plus results #5755
Oh, that makes sense! Thanks for responding 🙂November 19, 2015 at 3:45 pm in reply to: Strange non-healing (or slow healing) sores – NOTE: not for the squeamish! #5704
Hmmmm… I’m so sorry you’re experiencing such a puzzling symptom… I, myself, have strange skin issues that are chronic, but nothing quite like that.
Do these happen on only one part of the body or are they placed randomly?
I will keep my eyes and ears open, so if I learn of any possibility, I will chime in…
(I love researching random things :-))
~Kelly~November 4, 2015 at 4:46 pm in reply to: parasym plus question #5681
Ahhhhhhhh! I can’t wait!!!!!!!!
Thank you so much!!!
I love how you think outside of the box… I am very similar in always trying to figure everything out. When I watched your videos you just posted, my jaw nearly hit the ground.
I really wish that I could go to potscare… I feel as though it would change my life bc noone is looking at the WHOLE PICTURE… Just what each doctor specializes in (and there have been many of them)
The only two things holding me back on making an appointment are finances and the traveling (I live in NJ)
I am not sure what to do… I have an appointment with Dr Francomano in February ( I applied for her appointment in may 2014… So almost a two year wait!) I thought that appointment would be the thing that I needed to improve… But now I really wish I could make it to POTSCARE as well. 🙁
Thank you again for all that you do 🙂
~Kelly~June 28, 2015 at 10:57 pm in reply to: Gastroparesis and Fatigue in EDS/POTS and CFS — new findings to be released! #5560
Oh Dr D! I CANNOT wait for this video to come out! 🙂
Thank you so much for all that you do!
~KellyMarch 26, 2015 at 6:51 pm in reply to: mast cell medication #5407
Thank you to everyone on this website!
All of you are very helpful 🙂
KellyJanuary 10, 2015 at 9:44 pm in reply to: Connecting the brain & body…. #5212
Which type of abdominal binder helped you? Because I know the doctor instructed me to get compression stockings that had a compression of 20-30. So my question is, are all abdominal binders made similarly or should I look for a anything specific?
Thank you!!!January 5, 2015 at 12:17 am in reply to: Does this sound like/look like Intracranial Hypertension? MRI images included. #5203
I am in the same boat as you but finally got a dr to prescribe diamox and it really helps with the neck/head pain!
But I am on the waiting list to see dr francomano. I dont have an appointment with her until February 2016!
I was wondering who they recommended for you to see and where do you live? I live in new jersey and am trying to find a dr well versed in the correlation between EDS, POTS and mast cell issues.
KellyDecember 10, 2014 at 12:34 pm in reply to: Diamox question #5165
Unfortunately I dont have access to a computer 🙁
But I finally found an amazing integrative medicine doctor who prescribed me diamox but the pharmacy filled it as an “extended release” since she prescribed 500 mg twice daily… Now we’re going back and forth between the doctors office but they think it’s ok to take the extended release but I think it would be better to take 250 three times a day.
Why should we avoid the extended release?
i just want to use what will work!
KellyDecember 7, 2014 at 12:13 am in reply to: Diamox question #5156
Thank you soooo much for everyone’s reply!
Dr D- I have one small problem… I only have access to internet through my phone and I can’t download a PDF!!! And I would love to purchase the book… Im sure this question has been asked a million times, but is there any possible way to purchase the book in another way other than PDF???
Thanks again 🙂
KellyNovember 14, 2014 at 12:15 pm in reply to: Dr Diana, Barbara… or anyone willing to help! #5108
I was just wondering how often should I wear the Philadelphia collar? Is that something you are supposed to sleep with? And also would that decondition the muscles in my neck?. My headaches have been progressively worse and now they are everyday.
KellyOctober 7, 2014 at 9:00 am in reply to: Dr Diana, Barbara… or anyone willing to help! #5058
Thank you for your help. :-). Before i was finally diagnosed with pots, i was CONVINCED that i was deficient in magnesium but my primary care physician rolled his eyes at that theory and he finally ordered a serum blood test and of course that came back negative… But i do know that magnesium is on a cellular level so the blood test might not be sufficient. I’ve read in your posts and others that Epson salt baths help… Is there a specific amount that you put into the water, or just pour it in??? Hahaha. And do you use it everyday? And if i wanted to use a supplement, how do i know which to use? Because i know that there are different forms. And regarding vitamin c, would a multivitamin suffice or should i use a separate vitamin c supplement? I try my best to get my nutrients from the foods i eat, but just to cover all bases just in case I’m not digesting everything properly.
Thank you again,
KellyOctober 1, 2014 at 9:52 pm in reply to: Dr Diana, Barbara… or anyone willing to help! #5052
… And yes I had a brain MRI in January I believe and the results were “normal” but somehow I find that hard to believe… For instance, I had a recumbent MRI of my cervical spine in November 2012 and they only noted a herniation to c6-c7… But recently I had an UPRIGHT MRI of my cervial spine and mannnnny other things were noted… So that makes me wonder about the brain MRI…October 1, 2014 at 9:47 pm in reply to: Dr Diana, Barbara… or anyone willing to help! #5051
Thank you for your reply! I have been consuming ALOT of salt and water daily… I should invest in a Philadelphia collar actually. I was taking prilosec for a year for gastric ulcers but they recently healed so I have discontinued that. Somehow I feel that taking excess amounts of antacids can cause “low” or not enough acid which can mimic symptoms of an over production of acid???. Im currently taking the zyrtec Zantac combo in hopes to relieve the symptoms of the mast cell symptoms. I have a doctor that is dealing with my POTS but I have yet to find a doctor that is well versed in the correlation between POTS, EDS, mast cells, GI issues, insomnia, pain and everything else going on in my body. Im continuing with the z/z combo because I wonder if inflammation plays apart in all of my POTS symptoms because the red blotches on my skin have definitely gotten worse since my symptoms worsened. Im the one who brought up the z/z combo to my pots specialist and he told me to try it so I asked what dosage should I use and he said whatever the bottle recommends… So I’m not even sure if im taking enough zyrtec throughout the day?. I just wish someone could look at the whole picture and put all of the pieces to the puzzle together…
Thank you again for your time!!!