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RaeParticipant
Thanks so much for taking the time to respond when you also have so much on your plate with Diana’s being in the hospital. I wish her all the best in her recovery and hope she’s feeling better soon. These are challenging illnesses that we’re all dealing with and I hope for the best for both of you. Take very good care.
RaeParticipantI am not sure I understand the mechanics as to why Diamox works for external communicating hydrocephalus but am wondering since apparently Ginkgo Biloba is used as an alternative to Diamox for altitude sickness now whether it would help with external communicating hydrocephalus?
Has anyone tried/checked into this? I wonder if the effectiveness would be hampered by how acidic/alkaline the body is like Diamox?This link gives an interesting overview of the herb and the percentage of “ginkgolides” to look for in a quality product and even doses.
http://www.drweil.com/drw/u/REM00004/Ginkgo-Biloba-Dr-Weil-Herbal-Remedies.htmlGuess it’s not very expensive and probably wouldn’t hurt to give it a two month try since I do not have access to Diamox.
Thanks in advance.We’ll done you for finding a connection there. I also wondering if it would help but not specifically hydrocephalus but intracranial hypertension. I look forward to hearing what comes of your find and how it might help.
RaeParticipantThanks for the replies, everyone. I really appreciate it.
Unfortunately, my specialist on this issue is 500+ miles away & my PCP is overseeing the mcad treatment. I wasn’t told by my specialist I’ve been taking this for over a month. to work up to the cromalyn sodium dosing so I’ve been taking the full dose of 100mg viles 4x/day since the beginning. I mix it in vitamin or sobe water with stevia as I have less problem swallowing that than plain water which is really difficult with my dysphagia. I’ve been taking this full dosing from the start for more than a month now.
thoughgo
So with that information, does that have any bearing on your thoughts or help fill in the picture for you at all? I’d love to hear any additional ideas or thoughts you have. Thanks so much. I can’t tell you how much I appreciate it.Hugs & many thanks,
Rae -
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