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Marsha101Participant
Hello again and thank you for your reply.
This POTS illness is like a puzzle isn’t it? I have been through this with Meniere’s…so the balance test says there is damage done by ? (? they conclude is inflammation due to too much fluid) but then what is causing the build up of fluid off and on?
At least it hasn’t taken me 3 yrs (which is nothing compared to some people) to find something to help with the POTS!
I have purchased your book but just wasn’t far enough into it 🙂 I understand what you are explaining and saying….I just don’t know how to approach my internist… I too am on disability and used to be in the medical field…so have a fair amount of knowledge…and would like to get down to the primary issue.
May I ask you Dr. Diana…are there blood tests for “other” blood cells to determine if they are misbehaving so to speak?… I really don’t want her to say “well, it’s probably just a histamine/mast problem so take your antihistamines and off you go.” I do feel much better with the antihistamines and am worried that she will see that as a cure!
Your book is a wealth of information…so precise and well put together!
Thank you 🙂
Marsha101ParticipantThank you so much for replying Dr. Diana and to the others too 🙂 I would like to thank you Dr. Diana for this website and her work as I was on my hands and knees ill and no one could figure out what was wrong with me. I also have fibromyalgia and Meniere’s Disease along with asthma and severe gerd. All these issues along the years and then non-hyper POTS…24 hr urine ruled that out…? I know for sure it is a mast cell issue as my symptoms abate quite a bit when I take the Z/Z combo.
It is so wonderful to not feel alone…to have a community to come to and access to research and suggestions that work!
As they don’t check for histamine in urine here in Ontario, Canada; does anyone know of how to have this test done?
Thank you all again…
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