Forum Replies Created
April 20, 2015 at 1:44 pm in reply to: in the Driscoll theory, how does one account for passing / failing a tilt table test? #5443
you know, since Fludrocortison and Midodrine do help a “little bit” … I bet maybe I have both types. I wonder if that is possible/common. My dizziness, tachycardia and fatigue seem to be the worst at night.. not in the morning like so many other POTS sufferers describe. I also cannot drink the amount of water they suggest, not only does it make me more dizzy but I know I start urinating too much (polyuria) and then become vitamin deficient. Coffee seems to help quite a bit, I think Dr. Driscoll would refer to this as “self medicating” 🙂
All thoughts are welcome and thank you to all who have responded.. I’m trying to solve a mystery..
interesting… I was diagnosed with RBD (sleep walking) and have been treated for it now about 10 years with Clonazapam nightly.
Thank you so much … I really appreciate your feedback.. I will continue to experiment and post any findings..
The headache seems to be constant now. It seems to be positional as I feel it when I tip my head up or down or when I stand or sit.. like pressure behind my left eye. Could this be a side effect of Z/Z and do you (anybody with experience) think it will pass or should I discontinue Z/Z?
I started taking Z/Z by the way.. twice daily with my fludrocortizone and Midodrine (since they’re on timers). The dossages are 8 hours apart (essentially am and pm)
I haven’t noticed any changes other than a slight headache and diarrhea. But there is no way for me to know that it is because of Z/Z except that it felt different. Is this common for anybody starting out on Z/Z?
I don’t have any MRI yet and probably will not for a while. I have very expensive yet sub-standard insurance that will probably deny me. I’m waiting for a referral to a neurologist and have been waiting for months and months.
As far as symptoms go I don’t have headaches like some people do nor do I believe I have any liquid draining from my spine out my nose. What I do have is all of the POTS symptoms and a very painful neck with radiating pain. I also have endocrine disturbances which according to the book could be pressure on the pituitary sella. Since I was a child If I put my head down I get a swaying sensation and feel like multiple limbs are moving.
I know I get terrible altitude sickness (which would support the theory I suppose). I have GI issues, sensitivities to wheat, gluten, night shades, milk, nuts, and seeds.