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Thank you to everyone and Dr. Diana for always listening!
Update: I stopped florinef and low and behold my headaches have much improved! I also went off Singulair….my mom had actually noticed my moods drastically changing when I was on it, but at first I didn’t attribute it to the singulair. I had higher levels of anxiety, emotional instability (i.e. feeling like crying for no reason). Even my dreams were very vivid and unpleasant! I am happy to be off of it.
I’m planning to talk to my allergist/immunologist about a LOT Of things. I actually put together a chart listing out my cortisol levels, ACTH, and thyroid levels over the years to give to my doctor. I think it’s important to take a history of what has been going on, instead of just looking at one number in the present. My ACTH, cortisol, and thyroid have been doing some very funny things!
Next steps: mast cell stabilizer, possibly switching allegra to zyrtec, addressing thyroid/adrenals, hormone levels/birth control.
Thank you so much for all of the insight and help!!!! 🙂
Thanks for the replies 🙂
I stopped my dosage of florinef and my headaches do seem much better….my racing heart is not though. I am wondering still about my hormone levels, thyroid, and adrenals and what role they play in all of this. I can’t seem to find a doctor who will do a hormone panel on me. I go to one of my doctors tomorrow and will talk to her about it again. I have found a wonderful allergist at Rush (In Chicago) that specializes in Mast Cell issues. She is reading Dr. Diana’s theory part 2 before my next visit to her.
Thanks for your replies,
I’ve learned that I have to be my own advocate. I’ve been with me for 26 years, so I know my body the best, unfortunately doctors don’t always agree. How old is your daughter? I am working on researching and learning more about POTS. Dr. Diana’s information has been very very helpful, I just need to find a doctor! I’m planning to go across the country to a doctor, if that’s what it takes to get the correct diagnosis, etc. from a knowledgable doctor.
I am curious about birth control and menstration. My gynecologist just switched me to “low loestrin” instead of “loestrin.” She thinks it could help by keeping me on some form of hormone during the 4 days of my period. Maybe I should post a new topic to ask people about it.
Yes, I’m calling tomorrow to schedule an appointment with a geneticist in Baltimore 🙂
I am praying that this time, I won’t feel so judged. Thank you for all of your help and kind words.