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Dr.B ordered an MRI after my MVA. Just R sided protrusions at c5c6 c6c7. (No flexion/extension though) No chiari malformation but I still have pressure at the base of skull. Not 24/7 now but it comes and goes. Why is it everytime I sit at the computer I start to feel a mini spell, often when I work also (massage therapy) I believe it is the possition of my head (Flexion). Any suggestions? Sarah Hayes(doctorate in osteopathy) did orthopedic testing for alar and transverse ligs in which she stated her concern for instability and she also said I had decreased blood flow to the brain and scar tissue that has my C1 adhered to the temporal bone. I have not mentioned that to Dr.B yet. Had colonography (no hernias,elevated amount fecal matter), chalk drink to check digestive sys, CT angiogram heart-normal(done because of chest pain I get), angiogram neck just recently-no dissection(this chiro injury was 3 years ago), ultrasound of carotid artery-was reported poss mild stenosis but angiogram denied, funny thing is Dr. Loane showed me my MRI in which it is apparent that the left carotid is dilated in comparison. Also we looked at C1 and it is apparent to me that the C1 is shifted to the left. He stated that what they look for is fractures though. I can not seem to figure out how to look at it properly on my own computer. CT Angiogram of neck I will be getting a copy to see for my own eyes too. After the chiro injury for 10 months I could hear and feel my pulse right behind my left ear. The symptoms I had right after the adjustment were like a dissection. But no angiogram was done. I could not get out of bed for 3 days and by the time I got to see a doc I believe it was assumed that if I made it this long then I probably didn’t have a dissection. MRI brain post chiro-no pituitary tumour. EKGs, heart monitor which never picked up any of the heart racing that I have. But I invested in a heart monitor watch and regular blood pressure monitor. It is very apparent to me that my heart rate goes up considerably after rising from rest and sometimes in bed too for no reason. Plain xray after mva of neck no fractures, hmmm what else, tons blood work but I am not up on that YET. I have struggled through this so bad and I’ve lost the active life I used to have. All I want is for the diagnosis to be clear and state what I know that it all started with the chiro then worse by the mva. I am struggling through every day whether these docs see it or not. I believe they look at me and see I’m only 33 and slim and I do physical work, how can I be as sick as I say I am. I am, I just refuse to take away the life my kids and I know even if it is making me suffer more. Sole provider,self employed, never able to get disability insurance or life now on anything. Can you see my slight dilema here. I want someone to believe me and not say that it is just a panic attack. But No mention of EDS but I see her tomorrow and I will ask. Thank you for the reply!! It means more then you know to just have someone listen I guess and not judge.
I’m so sorry you are going through this!December 14, 2011 at 7:00 pm in reply to: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? #1611
Not diagnosed with pots yet but I have two docs that think I may have it. No referral to electrophysiologist yet. I was rearended June 2010 and I remember being on the emerg table saying I felt like someone was sticking something in the base of my skull. No fractures, MRI ( c5c6 c6c7 mild right paracentral disc protrusion), CT angio normal, carotid ultrasound-left mid carotid elevated velocities possible mild stenosis. My osteopath seems to think it is the alar and transverse lig are weak. Point is I’ve have this pressure and burning pain at the base of the skull since. Worse when I lay down, and much worse when I wake up. If it is pots, what in your opinion do you think it is?December 14, 2011 at 12:35 pm in reply to: Do you feel sick when you lie flat on your back, or have you ever felt "paralyzed"? #1609
In the interest of research 🙂 can you tell me if you feel worse if you lie flat on your back? How do you feel? What happens? Have you ever had episodes where you felt paralyzed, and were unable to move and perhaps even speak?
I have! I think I know why, but I wanted to hear from you all and see if we’re having the same funky thing going on here!
Thank you, my friends!
I”m not sure if I’m posting properly but here it goes. I am not diagnosed yet with anything other then a possible pain disorder. That is bull:) I believe along with two other doctors that I have pots. It all started 3 years ago,ugg, when I had a rotational adjustment by a chiropractor. I went home feeling odd and then by that night I could not move. I was stuck in bed with extreme dizziness, extreme nausea, extreme weakness, I could not move my right arm. Lasted 3 days. Then for a year and a half I had spells. ALl the time, to the point of going to emerg. Normal results everytime. Wasd rear ended a year and half ago and been 10x worse since…Does anyone else know of their pots being caused by neck injuries like these.