Forum Replies Created
May 19, 2012 at 11:52 pm in reply to: Cd57 test low #2193
Yes we talked about chronic Lyme but I didn’t know besides HIV and cfs if there was just underlying bacteria that wasn’t from Lyme..March 20, 2012 at 9:23 pm in reply to: Is it a Mast Cell Problem #1889
Do u feel that the treatment for mast cell ( zirtec and Zantac) are helping you with any of your sumptoms…Especially loose joints? Thanks!!March 6, 2012 at 8:40 am in reply to: Narrow angle glaucoma #1784
Hi dr Diane. Thank you for replying so quickly!! I have some more questions. Why would my narrow angle glaucoma get be bad then get better then get bad again? That is why I thought maybe my neck or spinal fluid had something to do with my pupils. So you recommend me getting the laser surgery even with eds? Also I was wondering…my naturalpathic dr told me I have too much copper in my body. I was reading a lot about it and copper has a lot to do with connective tissue. Do you think maybe that has something to do with my week ligaments and connective tissue. Thanks so much for your thoughts!! I really appreciate everything you do! You are awesome!!! I’m getting ready to watch your newest video.January 11, 2012 at 10:35 pm in reply to: Other causes of POTS? #1659
Hi I was wondering for all mast cell you are suggesting take zirtec and Zantac right? I know you say double doses…there are 75mg and 150mg of Zantac. Which one do you recommend? Can we just take one or the other? Or do you recommend both? Also is that all you need to stop mast cell. Oh and if it stops it does your body start to heal from it?
Another is if neck is twisted (which mine is) and might be cutting off spinal fluid. Then should diamox help or would you need that fixed to help the flow? I heard so many side effect of dimox. How much do you take dr. Diane? And your son bc I have a fighter who might need it!
Does mast cell cause are collagen to become more flexible? And do you think it’s the cause of autoimmune? Bc I NEVER had symptoms growing up up except scoliosis and then I had my 3 kids and after the third is when my neck started hurting. Then I found out I had an arachnoid cyst on spine at t3 and block spinal fluid so I had that drained. And at the same time right after my neurologist thought I had ms and put me on steroids and a month after that is when all my loose joints started and other eds symptoms. I know this is some kind of an autoimmune thing! Don’t know if taking treatment for autoimmune will helpor make things worse. Thanks for listening and hopefully will get your imput on all this!!!!!November 13, 2011 at 8:05 pm in reply to: Few ques. about treating mast cell #1574
Didn’t know if anyone had any answers??? Thanks!!!November 9, 2011 at 8:50 am in reply to: Migraine / facial pain #1573
Could be….are you going to get the MRV or venogram to see if you have it? Do you have MS or EDS or both?November 3, 2011 at 10:00 pm in reply to: muscle spasms????? #1570
This does make sense with the prednisone causing mast cell bc I had surgery on an arachoid cyst in my spine ( which we think was causing my leg pain, numbness and tingling 2 years ago) which then filled back up 3 months later… Then they thought they saw a lesion on t11 and did a spinal tap which showed I had obands….but no other lesions…this actually happened before I had the surgery. So after surgery suggested I had MS. I went to shands…they weren’t sure. USF who said I did, but neurosugerons did not think I did. So I didn’t end up taking meds for MS, but I did take I dose of IV steroids and a couple months later is when I started feeling loose and everything cracking and popping and hair started falling out.. This started 2 years ago. But I did have horrible neck pain for the last 6 years and my neck is straight and twisted. I have had mild scoliosis since the 7 th grade ( I am now 35). But it has gotten worse since the last 6 years or so. I don’t know if bc that is when I started going to chiro and I know they are not good for us…didn’t know I had this till a year ago. So I understand where mast cell makes sense, but I don’t have any allergies. I definitely do get the pressure thing. And I do have that cyst blocking fluid too. It’s weird when my neck hurts the rest of my body seems better then my middle back will hurt then my low back will hurt and my legs will have more symptoms. It feels like my spinal fluid is stuck or really pressured at the spot that it hurts…I don’t know if that makes sense. I have researched ccsvi since Oct. 2009 and had an ultrasound done and it only showed valve problems. I didn’t do anything about it bc I have heard all different about fixing valves. I even did the first or maybe second walk and roll ccsvi walk with dr. Dake in Tampa. I totally believe in it. And can’t wait till they get more info.
I sent you an email about a week ago dr. Diane, but I know you r busy so you might not have read it yet. It explains my whole Story better ;). Thanks for all u do!!!!!!November 3, 2011 at 9:34 pm in reply to: spinal/cranial fluid leaks anyone? #1569
Did you have a CT myelogram Dr. Diane? When they do the beta test…where do they get it from. I sometime have a crusty film ( I know…gross) in my ears and wondered if that was spinal fluid…