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nursebetty7Participant
can someone have POTS and Hypermobility and not have EDS? If the Mast cell therapy is the answer then why does my cardiologist only bring up florinef and midrodrine? It sounds like a great answer! who wouldnt want to take and antihistamine over a steriod?? 🙂 I have been struggling with POTS and Hypermobility for so long, as well as the million other sxs that so many have brought up and most ppl think it is all in my head and i just need to keep going excercise and ill feel better. like it is mind over matter!! It is so nice to see (well kinda… you would never wish any of this on anyone) that other ppl in this world have similar if not the exact same sxs like the chronic pain in the neck head and shoulders the popping out of joints especially my hips and shoulders, the chronic fatigue the fainting the GI sxs the varicose veins the head aches the severe tiredness and needing to rest after everything i do especially showering drying my hair and eating… oh the list could go on and on!! hope all is well. i have to go push myself and go to work!! 🙂
March 8, 2012 at 7:05 am in reply to: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? #1800nursebetty7Participanthey Dr. D. i took your advice and joined the forum. at this point my dx is hypermobility and POTS so i came to this thread first. I do have that angel wing pattern type neck ache all the time. Some days much worse then other and sometimes coupled with a very bad headache and sore jaw with tingles or twitches going up to my right eye. I always thought it was because my muscles were over compensating for my loose ligaments from the Hypermobilty since my neck and shoulders (and hips) are the most effected areas and constantly popping out of place. I also thought this was worse in the morning bc my pain increases when i get stiff from not moving too much and i wake up with sore muscles and joints that feel out of place and have to pop them back in. hope all is well, bethany
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