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Hi
Sorry for adding my post in such a delayed fashion. I came across with this page whilst googling on aberrant endocrine system and EDS. (I’m already a member over this site)
So little is said/researched about endocrine system and EDS which is simply quite shocking.
I am convinced a fair proportion of EDS-ers may be living with some “autoimmune” condition. Endocrine issues must be quite a big factor in how poorly we are functioning, in my personal experience.
ourfulhouse
You’re so so far ahead of me. 😆
It could be a minor printing glitch? Dr Diana ought to get a refund for faulty printing or get new ones printed for free? :red:
Hope to be able to go through the book before I see a consultant in mid-June to discuss Driscoll Theory.Best,
stryderslist2 You’re an excellent publicist for Dr Diana!! %-P
I would still hesitate to pass the whole “book” onto busy clinicians, though.
It might be useful if there was a shorter hard copy of Driscoll Theory for professionals/clinicians/social workers etc, who would/might be somewhat reluctant to read the whole book. 😆 Here’s me hoping 🙂
Hi stryderslist2
Thank you for the helpful feedback, which made me decide to purchase it soon.
CANNOT WAIT!! 😛Hi I am 50 years old and am diagnosed with EDS hypermobility & autonomic dysfunction amongst other neurologic symptoms since many years. My neck has certainly gone downhill gradually since peri-menopause. I often wondered if this is related with hormonal decline, reduction of female hormones/ageing in someone who was born with developmental issues e.g. EDS. I mention this because I also developed a goiter of late whilst my thyroid tests came back within reference ranges.
I’m not sure but it’s also possible that my cervical area was injured at some point due to hyperextensibility either in sleep or when I am awake.
Recently, I bought myself a rigid collar to wear during the daytime by following advice on D Theory. It’s tough. I had tried but it’s so uncomfortable. I already wear a soft collar at night which helps. I get woken up with pain in the back of my neck and the side of the neck. It’s a very sharp, shooting pain which I do dislike.
I also heard cranial snapping sound at the back of my skull more than once. It feels as if my neck/shoulder and skulls weren’t quite aligned together normally. I get this in my lower hip as well. I get sudden sensation of blackout as I try to look behind me by turning my neck.
I seriously do wonder how my mobility would be in the next 10 years or so. I’m not depressed yet I am not too optimistic. But I digress.
Hi I wasn’t sure if it was part 2. I was really impressed by part 2 on kindle and wanted to get a hard copy of it.
Are you happy with the paperback? :cheese:I did notice there was a new hard copy which I was waiting for but it wasn’t titled “Driscoll Theory part 2” and I was somewhat puzzled. I already read DT part 2 on kindle but I was waiting for this hard copy for my doctor. I would hesitate to send him a whole “book” knowing his time is very valuable and I may come across as a very demanding and rude patient, who would expect him to read a whole book…!! Would you be able to sell a hard copy of Driscoll Theory Part 2 on the website, if possible, please? Thank you for your considerations in advance. Best Wishes,
