You seem to enjoy learning Maffin!
Maybe these will help
Holy shit. I was not expecting that response. You obviously take your health seriously.
If there’s anything to say it’s thank you for such a real description.
Finally, someone with EDS who takes modafinil! I read it’s used off-label for CFS so I was thinking of trying to get it from my doctor. what does it do for you? And are the other drugs worth looking into as well?
I’m sorry I don’t have anything to add about POTS. I’ll look around for you though!
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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross