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ScaredSingleMamainMarylandParticipant
Thank you! My sister took Diamox and though it didn’t help her I wondered if it may be right for me. To make everything worse, my employer notified me yesterday that they are firing me because of my being out on disability….so now on top of my health problems (and the health of my daughter, mother, and sister), I have to worry about money and health coverage : (
ScaredSingleMamainMarylandParticipantYes, I am talking about Dr. Francomano. My sister loves her. I filled out all the paperwork 2 weeks ago and am waiting for an appt. Date. I told them to put me on the cancellation list. I am very stressed between my health problems, my sister’s health problems, my mom’s cancer and other health problems, money issues, and now my employer contacted me and told me when I get a FMLA status letter in the mail they need me to call and talk to them (worried they want to terminate me now that I am no longer protected by FMLA). Anyway, thank you for taking the time to respond to me!
ScaredSingleMamainMarylandParticipantI am trying to get in to see my sister’s geneticist. She diagnosed my sister with MCAS and thought from my sister’s description of my symptoms that I may have it too but the geneticist has no appts until next year and I can’t seem to find another Dr. That knows about MCAS.
~Ang.
ScaredSingleMamainMarylandParticipantThank you for your reply! I have avoided the few triggers I could identify but still I get worse. It used to be sleep was sacred for me because it was the one time I knew I would feel okay but now I wake out of my sleep because of symptoms (primarily chest pain and pulse fluctuations). I really don’t know what to do anymore.
Ang.
ScaredSingleMamainMarylandParticipantThank you Barbara! I do notice my head being down is a contributor (sp). However, I have symptoms many other times when my head/neck is in normal position. I try to adjust when I can (I.e. I now sit for showers and read less and use my phone instead of a big computer, etc.). One scary thing of late is my symptoms used to subside with sleep (so long as I was not in an attack or having symptoms when I went to sleep) but now the tachycardia, neuropathy type issues, dizziness, and headaches are happening in my sleep and waking me. I am so frustrated that my Neuro. Says it is POTS and wants to look no further and do nothing more than prescribe seizure/migraine meds. Anyway, I very much appreciate your reply and suggestions. Thank you and God bless!
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