Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
I’m in the UK and have been diagnosed with FND (Functional Neurological Disorder) which has all but replaced the term Conversion Disorder here. I have Chronic Fatigue with it and only just in the last month have been noticed to be hypermobile, which led me to finding out about EDS….something which ticks a scary number of boxes for me.
I’m due to see my GP soon and explore the possibility of EDS. Interestingly, quite a few people on the private Facebook forum of http://www.fndhope.org have stepped forward saying that yes, they are hypermobile or indeed have EDS!
I’ve so many symptoms and things like, I think, undiagnosed dysautonomia (I am almost constantly dizzy and gets worse on standing, heart randomly beats fast….so many things going on!)
I’m looking for clarity. I was convinced I had MS until my MRI came back ‘within normal limits’ but am still not entirely convinced that has been ruled out (clear VEP but no LP). Help?!
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross