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I wish these posts had “Like” buttons! 🙂 Thanks for your hard work Caroline and Dr Diana!
I tried posting something the other day and it got deleted as spam too. The forum’s spam checker might just be hyper-vigilant. From now on I write my posts and save them as a document before hitting the post button – so they can’t be lost in the spamhole.
Dr Diana, I believe I sent you a bunch of my labs just after I posted it. LOL was typing away for an hour or two… Hope it went through!! Thanks 🙂 Cool to see that EDSers have low CD-57.
My vit D came back low at 20 something but raised to 56 in a few months after taking 2-3,000 IU every other day. Seems my body responds fairly well by comparison. Having it checked again. Going to be seen re EDS diagnosis…so don’t count me an EDSer YET…will update when I have dx or specific lack of one!
I have a clinical diagnosis of Lyme, Babesia and Bartonella. Labs do not show it, but I have not gone through IgeneX. The Lyme itself hasn’t been active since Oct of last year, the babs comes and goes and the bartonella has shown up only recently (knew it for over a year). Have labs VERY positive for chronic active HHV-6, Coxsackie A, EBV and a lab indicating past or weakly current infection of mycoplasma pneumoniae. My CD-57 is very low (CD-57 has been used to track Lyme recovery status but other infections like HHV-6 and mycoplasma also lower it) and I have labs showing my genetic susceptibilities (Shoemaker’s research), C3a and C4a and TGF beta 1. My Sed Rate was normal only a 1, so I’m waiting for result on CRP and will have mold antibodies drawn next, considering my moldy living situation. Don’t have labs for TNF, IL-1 or that, but will be glad to send you what results I do have. Can they be sent by email? or fax? I have joint pain everywhere, CFS, MCS, POTS, and definitely JHS if not a type of EDS. Thanks! 🙂 KC