Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.
Hello, new friend! I just wanted to mention that Zonisamide is generally prescribed for seizures. Are you having true seizures? At POTS Care, we see quite a few folks presenting *similar to*
seizures, but these are not “true” seizures, and need to be addressed differently. Gentle hugs…
Hello,
I’m new, and I’m very confused about all of these conditions related to cerebral compression. I have POTS but I do not have any of the CSF leaks, or pressure symptoms – no headaches, no dripping fluid – nothing that I can observe actually. My POTS developed after a sinus turbinate surgery and greatly worsened in grad school almost 18 years later. I have since had ACell/PRP treatments to heal the turbinate nerves and they helped me emerge from serious illness – was bedridden, suffocation, severe POTS. My main symptoms now are breathing difficulties – the bronchioles actually feel sore when I breathe, exercise intolerance, temp dysregulation and brain fog. The breathing is what bothers me most though. I don’t feel like I am a candidate for Diamox or even Parasym plus. Really lost. Any suggestions?
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Twitter: @prettyill
“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”
-- Chris Gross