Anneke shares her experiences with POTS and the care she received at POTS Care … [Read more...] about POTS and Me – blog by a POTS Care patient
Tickle Me Tubies
Handmade feeding tube pads and other tubie products … [Read more...] about Tickle Me Tubies
The Driscoll Theory® Newly Revised is now Available for Purchase
After much delay The Driscoll Theory® Newly Revised is now Available for Purchase as a downloadable PDF. We decided a PDF was the quickest way to get this information to you. The PDF is not printable; however if there is enough demand we'll see about producing The Driscoll Theory® as a book. Click on the icon or link or icon to buy it now. … [Read more...] about The Driscoll Theory® Newly Revised is now Available for Purchase
A strong advocacy group bringing awareness, education and hope to the entire EDS community! … [Read more...] about EDS Today
EDSRegistry.org Take a look!
Angel Lucas (fellow EDSer and Spoonie) and her husband are creating this awesome map of EDSers and where they live! They have much more in store for this site, and your registration can be as confidential as you would like. Please take a look and consider registering! It looks amazing so far! … [Read more...] about EDSRegistry.org Take a look!