Carleigh, a delightful 19 year old dealing with the daily struggles of POTS, has created this website to raise awareness of this debilitating condition. She shares how she copes with it on a daily basis. Inspirational! … [Read more...] about LifewithPOTS.com
EhlersDanlosNetwork.org
EDS Network Cares is a non-profit organization established and driven by EDS patients and family members who share a belief in, and a passion for research and education. This all-volunteer network is led by devoted volunteers whose primary goal is to make a difference in the lives of people who are suffering each and every day from Ehlers-Danlos Syndrome. … [Read more...] about EhlersDanlosNetwork.org
PotsPlace.com
Mission: To raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking. The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization. … [Read more...] about PotsPlace.com