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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Table of Contents – Driscoll Theory Newly Revised

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Table of Contents – Driscoll Theory Newly Revised

DEDICATION

 

ACKNOWLEDGEMENTS

 

INTRODUCTION

 

CHAPTER 1

 

EDS/POTS – A PARADIGM SHIFT

What is Dysautonomia and “POTS”?
Overview of Intracranial Pressure

The Role of High Intracranial Pressure:
The Role of Low Intracranial Pressure:

Diagnosing and Treating Abnormal CSF Flow:

Mast Cells and Inflammation
Vascular Abnormalities
The Vagus Nerve
Patient Position in EDS/POTS

 

CHAPTER 2

 

INTRACRANIAL PRESSURE – A CLOSER LOOK

Why so Much Confusion?

CSF Flow
High Intracranial Pressure in Children
Non-Surgical Treatment Options for IIH (or External Communicating Hydrocephalus)

 

CHAPTER 3

17

MAST CELLS — AND WHY THEIR CONTROL ISN’T THE COMPLETE ANSWER

Histamine 53
Looking Beyond Mast Cells 55

 

21
  22
  22

 

CHAPTER 4 59

 

THE ROLE OF VASCULAR ABNORMALITIES 59

Fundus Examination of EDS Patients 59

Vagus Nerve Compression by High Venous Pressure 62

EDS/POTS and Endovascular Procedures (“CCSVI” Treatment) 72

CHAPTER 5 76

NEW THINKING 76

Shift in EDS/POTS Treatment 76

Dr. Diana’s Top Picks 78

New Bugs 84

Acquired Collagen Damage 84

CHAPTER 6 86

WHAT WENT WRONG WITH EDS/POTS 86

Where Have we Failed With EDS/POTS? 86

What Can be Done for Patients Suffering Today? 89

CHAPTER 7 92

VALIDATING THE PATIENT 92

Part 1: Family, Spouses, Doctors and Self 92

The Problem of Invalidation 92

Strength to Go On 96

Part 2:  Tips and Tools For Resiliency 96

Tools in the Toolbox 97

Hope for the Future/Acceptance 102

Suggested Reading 103

CHAPTER 8 105

A PHYSICIAN’S PERSONAL PERSPECTIVE 105

A Message to EDSers 106

A Message to Physicians 106

Looking Forward 107

CHAPTER 9 108

GLUTEN AND EHLERS-DANLOS SYNDROME 108

Navigating The Many Ways Gluten Can Impact Your Health 108

Autoimmune reaction to Gluten- Celiac Disease 109

Gluten Intolerance 110

Wheat Allergy 110

Gluten Maldigestion 111

Gluten Chemical Reaction 111

CHAPTER 10 113

THE PATIENTS SPEAK 113

Emily’s Story 113

My Story 120

A Letter From Asher 123

Our Journey to a Diagnosis 124

I Have My Life Back 125

The Ten Year Headache 126

Our Journey for Hope 127

My Son’s Journey 128

CHAPTER 11 129

DIAMOX PEARLS 129

Common Side Effects 129

Allergies 130

Adverse effects: 130

Contraindications: 130

Uncommon Contraindications 130

Clinical Pearls 131

ADDENDUM 134

Our Research and “Invisible Illness” 134

Information on Testing and Treatment of EDS/POTS 136

ABOUT THE MEDICAL AUTHORS 137

Diana Driscoll, O.D. 137

Sharon Meglathery, M.D. 138

Christine Doherty, N.D. 139

Joao Paulo Ferreira, M.D. 140

Ananya De, Ph.D. 141

James Pazun, Ph.D. 142

TABLE OF FIGURES 143

REFERENCES 145

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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